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癫痫患者的生活质量。

Quality of life for people with epilepsy.

作者信息

Cramer J A

机构信息

Department of Neurology, Yale University School of Medicine, New Haven, Connecticut.

出版信息

Neurol Clin. 1994 Feb;12(1):1-13.

PMID:8183203
Abstract

The diversity and impact of problems related to epilepsy require each patient to develop a concept of what issues are most important, and seek to address these issues as a personal priority. Domains to be considered include physical, psychological, social, and epilepsy-specific issues. Level of independence is also an important concern. Quality of life instrument scores are a new measure of overall patient function. Use of well constructed, validated instruments specific for disease or general function will enhance the ability of health care providers to understand changes in patients that are not readily discernible without an extensive interview.

摘要

癫痫相关问题的多样性和影响要求每位患者形成关于哪些问题最为重要的概念,并将解决这些问题作为个人优先事项。需要考虑的领域包括身体、心理、社会以及癫痫特有的问题。独立程度也是一个重要关注点。生活质量工具评分是衡量患者整体功能的一项新指标。使用针对疾病或一般功能精心构建且经过验证的工具,将提高医疗服务提供者了解患者变化的能力,而这些变化若不经过广泛访谈则不易察觉。

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在法国两个省(上维埃纳省和克勒兹省)进行的一项社区调查中,65岁及以上老年人癫痫的社会和文化表征。
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Patient Reported Outcome (PRO) assessment in epilepsy: a review of epilepsy-specific PROs according to the Food and Drug Administration (FDA) regulatory requirements.癫痫患者报告结局(PRO)评估:根据美国食品和药物管理局(FDA)监管要求评估的癫痫专用 PRO 综述。
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Cross-cultural differences in health-related quality of life of people with epilepsy: findings from a European study.癫痫患者健康相关生活质量的跨文化差异:一项欧洲研究的结果
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