Goldman A, Christie D
Department of Haematology and Oncology, Hospitals for Sick Children, London, England.
Pediatr Hematol Oncol. 1993 Jul-Sep;10(3):223-31. doi: 10.3109/08880019309029488.
In this study we looked at children dying from progressive malignant diseases and their families, to see whether they discussed the child's impending death together. We also looked at what factors might influence this. We questioned staff in the oncology department about their attitude to an open approach in talking about death and their views of how often it occurred. Analysis of 31 children over 3 years old and their families showed that the approach of death was mutually acknowledged by six families (19%); seven (23%) children were felt to know but chose not to discuss death; in two (6%) families, discussion with the child was blocked; nine (29%) children died unaware, and in seven (23%) families, what the children felt was unknown. Staff members (22) all advocated an open, honest approach in talking to children about their death but varied widely and overestimated how often they believed discussion of the child's impending death occurred (range, 10%-80%; median, 45%).
在本研究中，我们观察了因进行性恶性疾病死亡的儿童及其家庭，以了解他们是否共同讨论了孩子即将到来的死亡。我们还研究了哪些因素可能会对此产生影响。我们询问了肿瘤科工作人员对公开谈论死亡的态度以及他们对这种情况发生频率的看法。对31名3岁以上儿童及其家庭的分析表明，六个家庭（19%）相互承认了死亡的临近；七个（23%）孩子被认为知道但选择不讨论死亡；在两个（6%）家庭中，与孩子的讨论受到阻碍；九个（29%）孩子在不知情的情况下死亡，在七个（23%）家庭中，孩子们的感受未知。22名工作人员都主张在与孩子谈论他们的死亡时采取开放、诚实的方式，但差异很大，并且高估了他们认为讨论孩子即将到来的死亡发生的频率（范围为10% - 80%；中位数为45%）。
