Pettle Michael S A, Lansdown R G
Arch Dis Child. 1986 Mar;61(3):278-83. doi: 10.1136/adc.61.3.278.
Despite the recent increase in interest in terminally ill children and their families and the post death adjustment of parents, there has been little research examining the adjustment and self concept of surviving siblings in such families. This paper discusses the results of a preliminary descriptive study of 28 children (from 14 families) whose brother or sister had died of cancer between 18 and 30 months previously. Behaviour checklists were completed by parents and teachers and self concept scales administered to the children. A lengthy semistructured interview was carried out, and measures of parental adjustment were gathered. A high percentage of children were found to be exhibiting emotional or behavioural difficulties, or both, and the results indicated that low self esteem was common. Parental and child adjustment were not found to be related inter se, nor did they seem to relate to the child's self esteem. Thus for many children the loss of a sibling might cause long term distress. Further, many children who did not manifest overt difficulties perceived themselves unfavourably in comparison with either their ideal or their dead sibling.
尽管最近对身患绝症的儿童及其家庭以及父母在孩子去世后的调适情况越来越受关注,但针对此类家庭中幸存兄弟姐妹的调适和自我概念的研究却很少。本文讨论了一项初步描述性研究的结果,该研究涉及28名儿童(来自14个家庭),他们的兄弟姐妹在18至30个月前死于癌症。父母和教师完成了行为检查表,并对孩子们进行了自我概念量表测试。进行了一次冗长的半结构化访谈,并收集了父母调适情况的测量数据。结果发现,很大比例的儿童表现出情绪或行为方面的困难,或两者皆有,而且结果表明自尊心低落很常见。未发现父母和孩子的调适情况相互关联,它们似乎也与孩子的自尊心无关。因此,对许多孩子来说,兄弟姐妹的离世可能会导致长期痛苦。此外,许多没有表现出明显困难的孩子,与他们的理想自我或去世的兄弟姐妹相比,对自己的看法都很负面。