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[谁是罕见病患者?]

[Who is the infrequent patient?].

作者信息

Granados Garrido J A, San Andrés Rebollo F J, Costa Zamora P, Lobera Argüelles L, Fernández San Martín M I

机构信息

Unidad Docente de Medicina Familiar y Comunitaria, Centro de Salud de Parla, Madrid.

出版信息

Aten Primaria. 1993 Oct 31;12(7):407-10.

PMID:8297971
Abstract

OBJECTIVE

To reach the rarely attending section of the population, in order to define its sociodemographic characteristics, and analyse its health status and use of the Health Services.

DESIGN

Observational, crossover study, using a questionnaire.

SETTING

Primary Care.

PATIENTS

Patients over 19 assigned to four morning-shift doctors at the Parla Health Centre (Madrid) and who had not attended for health care over the preceding four years.

INTERVENTION

Communication by letter and phone. Questionnaire.

MEASUREMENTS AND MAIN RESULTS

5.07% (468) of the catchment population satisfied our criteria for inclusion. More than half of these could not be located. Only 51 (10.9%) could be interviewed; and 14 (2.99%) remained in the study. Gender accounted for no significant differences. No one was over 65. Self-perception of their own health status was good or very good in 85.7%. 85.7% were smokers. 71% said that they "rarely" attended for health care. One male had three cardiovascular risk factors.

CONCLUSIONS

We found that finding the rarely attending person was not easy. The few cases analysed do not allow for extrapolation. Our findings showed he was a married 37-year old male with a steady job in the service sector. He smokes, doesn't drink and considers himself in a good state of health.

摘要

目的

针对极少就诊的人群,确定其社会人口学特征,并分析其健康状况及对医疗服务的利用情况。

设计

采用问卷调查的观察性交叉研究。

地点

初级保健机构。

患者

马德里Parla健康中心分配给4位早班医生的19岁以上患者,且在过去4年中未接受过医疗保健服务。

干预措施

通过信件和电话进行沟通。问卷调查。

测量指标及主要结果

5.07%(468人)的目标人群符合纳入标准。其中一半以上无法联系到。仅有51人(10.9%)接受了访谈;14人(2.99%)最终纳入研究。性别差异无统计学意义。无人年龄超过65岁。85.7%的人自我感觉健康状况良好或非常好。85.7%的人吸烟。71%的人表示“极少”就医。1名男性有3种心血管危险因素。

结论

我们发现找到极少就诊的人并不容易。所分析的少数病例无法进行外推。我们的研究结果显示,这类人群为37岁已婚男性,在服务业有稳定工作。他吸烟,不饮酒,且自认为健康状况良好。

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