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婴儿猝死综合征后的母亲悲痛

Maternal grief after sudden infant death syndrome.

作者信息

Ostfeld B M, Ryan T, Hiatt M, Hegyi T

机构信息

Department of Pediatrics, UMDNJ-Robert Wood Johnson Medical School, St. Peter's Medical Center, New Brunswick 08903.

出版信息

J Dev Behav Pediatr. 1993 Jun;14(3):156-62.

PMID:8340469
Abstract

Six months after the death of their infants of Sudden Infant Death Syndrome (SIDS), the subjective impression of mothers anonymously rating their initial and present grief was that there had been a reduction in all symptoms (p < .001). However, an increase in the relative ranking of some cognitive symptoms over somatic ones, the association of certain lifestyles and situational variables with higher levels of grief, and the implication for future symptoms of family decisions made during bereavement underscore the importance of continuing active support for these families. In relative ranking, guilt rose from 10th to 5th most prominent symptom, particularly among the 34% of mothers whose infants manifested clinical symptoms (p < .05). Single mothers had higher grief scores both initially (p < .05) and at 6 months (p < .002), were almost three times more likely to become pregnant within 6 months of the death but only one-third as likely to attend a support group, and were also more likely to move after the death (44% vs 25%). Mothers whose infants had been discovered by another caregiver reached out more to a crisis intervention service of a support program available to SIDS families (p < .05). Mothers without surviving children had grief levels comparable with those with children but were less likely to rate their pediatrician's support as satisfactory, increasing the probability that they would change physicians with subsequent children, thereby losing continuity of care and support.

摘要

婴儿猝死综合征(SIDS)患儿死亡六个月后,母亲们匿名对自己最初和当前的悲伤程度进行评分,主观感受是所有症状都有所减轻(p < .001)。然而,一些认知症状相对于躯体症状的相对排名有所上升,某些生活方式和情境变量与更高程度的悲伤相关联,以及丧亲期间家庭决策对未来症状的影响,都凸显了持续为这些家庭提供积极支持的重要性。在相对排名中,内疚感从最突出症状的第10位升至第5位,在婴儿出现临床症状的34%的母亲中尤为明显(p < .05)。单身母亲最初(p < .05)和6个月时(p < .002)的悲伤得分更高,在孩子死亡后6个月内怀孕的可能性几乎是其他母亲的三倍,但参加支持小组的可能性只有其他母亲的三分之一,而且在孩子死后搬家的可能性也更大(44%对25%)。婴儿由其他照料者发现的母亲,更倾向于向一个为SIDS家庭提供的支持项目的危机干预服务机构求助(p < .05)。没有存活子女的母亲的悲伤程度与有子女的母亲相当,但她们不太可能对儿科医生的支持给予满意评价,这增加了她们在后续生育时更换医生的可能性,从而失去了持续的医疗护理和支持。

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引用本文的文献

1
The psychological consequences of Sudden Infant Death Syndrome (SIDS) for the family system: A systematic review.婴儿猝死综合征(SIDS)对家庭系统的心理影响:一项系统综述。
Front Psychol. 2023 Feb 23;14:1085944. doi: 10.3389/fpsyg.2023.1085944. eCollection 2023.
2
Pre-loss personal factors and prolonged grief disorder in bereaved mothers.丧亲母亲的预损失个人因素与延长哀伤障碍。
Psychol Med. 2019 Oct;49(14):2370-2378. doi: 10.1017/S0033291718003264. Epub 2018 Nov 9.
3
The Grief of Mothers After the Sudden Unexpected Death of Their Infants.
母亲们在婴儿突然意外死亡后的悲痛。
Pediatrics. 2018 May;141(5). doi: 10.1542/peds.2017-3651.
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Rigour and Rapport: a qualitative study of parents' and professionals' experiences of joint agency infant death investigation.严谨与融洽:关于父母和专业人员联合进行婴儿死亡调查经历的定性研究
BMC Pediatr. 2017 Feb 7;17(1):48. doi: 10.1186/s12887-017-0803-2.
5
Parental understanding and self-blame following sudden infant death: a mixed-methods study of bereaved parents' and professionals' experiences.婴儿猝死后父母的理解与自责:一项关于丧亲父母及专业人士经历的混合方法研究
BMJ Open. 2016 May 19;6(5):e011323. doi: 10.1136/bmjopen-2016-011323.
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What do bereaved parents want from professionals after the sudden death of their child: a systematic review of the literature.孩子突然离世后,丧亲父母希望从专业人士那里得到什么:文献系统综述
BMC Pediatr. 2014 Oct 15;14:269. doi: 10.1186/1471-2431-14-269.
7
The dying child.垂死的孩子。
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