Jones S C, Gallacher B, Lobo A J, Axon A T
Gastroenterology Unit, General Infirmary, Leeds, England.
J Clin Gastroenterol. 1993 Jul;17(1):21-4. doi: 10.1097/00004836-199307000-00007.
A multiple choice knowledge questionnaire was developed for patients with inflammatory bowel disease (IBD). Initially, 20 questionnaires were piloted, and then questions of poor discriminatory ability (> 75% patients giving a correct response) were eliminated. A second pilot study proved the internal consistency (coefficient alpha = 0.84) and the stability of the questionnaire using a test-retest method (Spearman R = 0.86, p = 0.002). The questionnaire was then completed by 60 randomly selected patients attending colitis clinic. The mean score was 13 of a total of 36 (range 2-29). Eighty percent of patients wished to know more about their disease. Knowledge score was higher in patients who were members of the National Association of Crohn's Disease and Colitis (NACC) (p < 0.005) and in patients with Crohn's disease (CD) rather than ulcerative colitis (UC) (p < 0.005). Knowledge score correlated with the number of years spent in full-time education (R = 0.48, p < 0.001) and inversely with age (R = -0.33, p < 0.02) but did not correlate with disease duration. The study demonstrated some misunderstandings about IBD although most patients would have liked more information. The questionnaire could be used as a tool to evaluate patient education programs.
为炎症性肠病（IBD）患者编制了一份多项选择题知识问卷。最初，先试用了20份问卷，然后剔除了区分能力差（>75%的患者给出正确答案）的问题。第二项预试验研究通过重测法验证了问卷的内部一致性（α系数 = 0.84）和稳定性（斯皮尔曼相关系数R = 0.86，p = 0.002）。然后，60名随机挑选的在结肠炎门诊就诊的患者完成了该问卷。平均得分是36分中的13分（范围为2 - 29分）。80%的患者希望了解更多关于他们疾病的信息。克罗恩病和结肠炎全国协会（NACC）成员患者的知识得分更高（p < 0.005），克罗恩病（CD）患者的知识得分高于溃疡性结肠炎（UC）患者（p < 0.005）。知识得分与接受全日制教育的年限相关（R = 0.48，p < 0.001），与年龄呈负相关（R = -0.33，p < 0.02），但与病程无关。该研究表明，尽管大多数患者希望获得更多信息，但对IBD仍存在一些误解。该问卷可作为评估患者教育项目的工具。
