Death from cancer at home: the carers' perspective.

OBJECTIVES

To collect information from principal carers of people who had died at home with cancer; to identify areas of support which need improvement.

DESIGN

Semistructured interviews with carers two to four months after the death.

SETTING

38 general practices in the Exeter, Torbay, and Plymouth health districts.

SUBJECTS

207 carers.

MAIN OUTCOME MEASURES

Services received by carers and quality of support.

RESULTS

161 of 207 patients were aged 60 or over. 88 carers were aged under 60, 110 were 60-80, and 9 were > 80. Carers had difficulty in getting urgent professional help in only 15 out of 177 cases. 124 carers were not given advice on financial help and 174 were not told of support available from local charities. Although pain was well controlled, 25% of patients had no relief of other symptoms. Overall, 150 carers considered the support excellent, 45 good, 8 moderate, 2 poor, and 2 had no comment.

CONCLUSIONS

Although care has improved in recent years, health professionals need to give carers more advice about help available outside health services. Domestic help was often needed earlier. Better appreciation of carers' problems is needed.