Jones R V, Hansford J, Fiske J
Department of General Practice, Postgraduate Medical School, University of Exeter.
BMJ. 1993 Jan 23;306(6872):249-51. doi: 10.1136/bmj.306.6872.249.
To collect information from principal carers of people who had died at home with cancer; to identify areas of support which need improvement.
Semistructured interviews with carers two to four months after the death.
38 general practices in the Exeter, Torbay, and Plymouth health districts.
207 carers.
Services received by carers and quality of support.
161 of 207 patients were aged 60 or over. 88 carers were aged under 60, 110 were 60-80, and 9 were > 80. Carers had difficulty in getting urgent professional help in only 15 out of 177 cases. 124 carers were not given advice on financial help and 174 were not told of support available from local charities. Although pain was well controlled, 25% of patients had no relief of other symptoms. Overall, 150 carers considered the support excellent, 45 good, 8 moderate, 2 poor, and 2 had no comment.
Although care has improved in recent years, health professionals need to give carers more advice about help available outside health services. Domestic help was often needed earlier. Better appreciation of carers' problems is needed.
收集在家中死于癌症患者的主要照料者的信息；确定需要改进的支持领域。
在患者去世两到四个月后，与照料者进行半结构化访谈。
埃克塞特、托贝和普利茅斯健康区的38家全科诊所。
207名照料者。
照料者获得的服务及支持质量。
207名患者中，161名年龄在60岁及以上。88名照料者年龄在60岁以下，110名年龄在60至80岁之间，9名年龄超过80岁。在177个案例中，仅有15例照料者在获得紧急专业帮助方面存在困难。124名照料者未得到有关经济援助的建议，174名照料者未被告知当地慈善机构提供的支持。尽管疼痛得到了很好的控制，但25%的患者其他症状未得到缓解。总体而言，150名照料者认为支持非常好，45名认为良好，8名认为一般，2名认为差，2名未作评价。
尽管近年来护理工作有所改善，但卫生专业人员需要就卫生服务之外可获得的帮助向照料者提供更多建议。往往需要更早地提供家庭帮助。需要更好地理解照料者的问题。
