Fakhoury W K, McCarthy M
Department of Epidemiology and Public Health Medicine, University College London Medical School, United Kingdom.
Scand J Caring Sci. 1998;12(3):179-85.
This paper investigates whether informal carers' experience of caring for their dying cancer patients at home affects their retrospective evaluation of the services received by these patients from community nurses, GPs, and the health and social services in general. Analysis was conducted on a sub-sample of the Regional Study of Care for the Dying (RSCD), a retrospective survey of family members and others who knew most about the last year of life of a random sample of people who died in 20 health districts in the UK in 1990. The sub-sample consisted of 1,858 carers of people who died from cancer (ICD, 140-208). The results showed statistically significant associations between carers' satisfaction with community nurses, GPs, and the health and social services in general and their perceptions that caring at home was a rewarding activity, and that their social activities were severely or fairly restricted. Carers' satisfaction with all providers was also more likely to have been reported by those who reported having had no need for more home help. All this suggests the importance of supporting carers to enable them to fulfil their caretaking role and to cope with caring at home. This in turn could lead to an increase in their level of acceptability of the services provided.
本文探讨在家照顾临终癌症患者的非正式护理人员的经历是否会影响他们对这些患者从社区护士、全科医生以及总体的健康和社会服务所获得的服务的回顾性评价。分析是基于“临终关怀区域研究”（RSCD）的一个子样本进行的，该研究是对1990年在英国20个卫生区随机抽取的死亡人员的家庭成员及其他最了解其生命最后一年情况的人进行的一项回顾性调查。该子样本由1858名癌症死亡患者（国际疾病分类，140 - 208）的护理人员组成。结果显示，护理人员对社区护士、全科医生以及总体的健康和社会服务的满意度，与他们认为在家照顾是一项有益活动以及他们的社会活动受到严重或相当程度限制的认知之间，存在统计学上的显著关联。报告不需要更多家庭帮助的护理人员也更有可能对所有服务提供者表示满意。所有这些都表明支持护理人员以使他们能够履行其照顾职责并应对在家照顾的重要性。这反过来可能会提高他们对所提供服务的接受程度。
