Kyngäs H, Barlow J
Department of Nursing, University of Oulu, Finland.
J Adv Nurs. 1995 Nov;22(5):941-7. doi: 10.1111/j.1365-2648.1995.tb02646.x.
The personal meaning and perceived impact of insulin dependent diabetes mellitus (IDDM) were investigated in an exploratory study of 51 Finnish adolescents aged between 13 and 17. Interview data were examined using continuous comparative analysis. The personal meaning of IDDM was described using the following categories: a habit; a little devil; a nightmare; stress; prison; death; and hell. A core concept to emerge was that of control. Young people felt IDDM controlled, or limited, their freedom and independence. Two main themes emerged in terms of the impact of IDDM in the lives of adolescents: a threat to life's equilibrium and a healthy lifestyle. Diabetes was viewed as a threat to physical, psychological and social well-being which disrupted the balance of life. In contrast, the other main category, a healthy lifestyle, revolved around the notion that having IDDM offered a unique opportunity to live a healthy life. The results provided a useful insight into the personal meaning of IDDM and serve to raise awareness of the problems and difficulties experienced by adolescents with this condition.
在一项针对51名年龄在13至17岁之间的芬兰青少年的探索性研究中，对胰岛素依赖型糖尿病（IDDM）的个人意义和感知影响进行了调查。使用持续比较分析来检查访谈数据。IDDM的个人意义用以下类别来描述：一种习惯；一个小恶魔；一场噩梦；压力；牢笼；死亡；以及地狱。浮现出的一个核心概念是控制。年轻人感到IDDM控制或限制了他们的自由和独立。就IDDM对青少年生活的影响而言，出现了两个主要主题：对生活平衡的威胁和健康的生活方式。糖尿病被视为对身体、心理和社会幸福感的威胁，扰乱了生活的平衡。相比之下，另一个主要类别，即健康的生活方式，围绕着这样一种观念展开，即患有IDDM提供了一个过健康生活的独特机会。这些结果为IDDM的个人意义提供了有益的见解，并有助于提高对患有这种疾病的青少年所经历的问题和困难的认识。
