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社区癫痫患者的护理:新举措能否解决旧问题?

Care of patients with epilepsy in the community: will new initiatives address old problems?

作者信息

Thapar A K

机构信息

University of Wales College of Medicine, Cardiff.

出版信息

Br J Gen Pract. 1996 Jan;46(402):37-42.

PMID:8745851
原文链接:https://pmc.ncbi.nlm.nih.gov/articles/PMC1239510/
Abstract

Epilepsy is a serious neurological condition that has important medical, psychological and social consequences. Up to 90% of patients with epilepsy are not under hospital supervision at any one time; the role of the general practitioner is therefore of central importance. There seems little doubt that community care of people with epilepsy must be improved. This article reviews the research findings on the quality of care of people with epilepsy, examines the barriers to effective community care, and looks at local and national initiatives to improve the care of patients with epilepsy in the community. Finally, the review considers how care can best be provided in an efficient, effective and acceptable manner within the resources of present day general practice. A patient-centred model is proposed that would tailor care to the needs of the individual patient.

摘要

癫痫是一种严重的神经系统疾病,会产生重要的医学、心理和社会影响。多达90%的癫痫患者在任何时候都没有接受医院的监管;因此,全科医生的作用至关重要。毫无疑问,癫痫患者的社区护理必须得到改善。本文回顾了关于癫痫患者护理质量的研究结果,审视了有效社区护理的障碍,并探讨了改善社区癫痫患者护理的地方和国家举措。最后,本综述考虑了如何在当今全科医疗资源范围内以高效、有效且可接受的方式提供最佳护理。提出了一种以患者为中心的模式,该模式将根据个体患者的需求定制护理。

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本文引用的文献

1
Personal continuity and the care of patients with epilepsy in general practice.个人连续性与全科医疗中癫痫患者的护理
Br J Gen Pract. 1994 Sep;44(386):395-9.
2
Epilepsy care: a need for change.癫痫护理:变革的必要性。
Br J Gen Pract. 1994 Sep;44(386):386-7.
3
A controlled trial of two forms of self-management education for adults with asthma.针对成年哮喘患者的两种自我管理教育形式的对照试验。
Am J Med. 1993 Jun;94(6):564-76. doi: 10.1016/0002-9343(93)90206-5.
4
Medication compliance: the patient's perspective.药物依从性:患者视角
Clin Ther. 1993 May-Jun;15(3):593-606.
5
The long-term therapeutic management of epilepsy.癫痫的长期治疗管理
Ann Intern Med. 1994 Mar 1;120(5):411-22. doi: 10.7326/0003-4819-120-5-199403010-00010.
6
Epilepsy: a general practice study of knowledge and attitudes among sufferers and non-sufferers.癫痫:一项针对患者与非患者知识及态度的全科医学研究。
Br J Gen Pract. 1993 Nov;43(376):453-7.
7
Comparison of risk factors for coronary heart disease among attenders and non-attenders at a screening programme.一项筛查项目中参与者与非参与者冠心病风险因素的比较。
Br J Gen Pract. 1993 Sep;43(374):375-7.
8
An epilepsy needs document.一份癫痫的记录文件。
Seizure. 1993 Jun;2(2):91-103. doi: 10.1016/s1059-1311(05)80111-6.
9
The development of a questionnaire to assess knowledge of epilepsy: 2--Knowledge of own condition.
Seizure. 1993 Sep;2(3):187-93. doi: 10.1016/s1059-1311(05)80126-8.
10
The development of a questionnaire to assess knowledge of epilepsy: 1--General knowledge of epilepsy.
Seizure. 1993 Sep;2(3):179-85. doi: 10.1016/s1059-1311(05)80125-6.