Stiggelbout A M, de Haes J C, Kiebert G M, Kievit J, Leer J W
Department of Clinical Oncology, Leiden University Hospital, The Netherlands.
Med Decis Making. 1996 Apr-Jun;16(2):184-92. doi: 10.1177/0272989X9601600211.
The patient's perspective is of prime concern in weighing the benefits and side effects of oncologic treatment. Little is known about patients' preference and attitudes. The authors developed a short questionnaire to assess patient attitudes concerning trade-offs between quality of life and length, or quantity, of life (the QQ Questionnaire). The questionnaire turned out to be feasible for use in various groups of cancer patients. In a factor analysis, the questionnaire was shown to consist of two factors, a Q(uality) and a L(ength) factor. Values of Cronbach's alpha for the Q and L scales (consisting of four items each) were 0.68 and 0.79, respectively. Younger patients and patients who have children assigned relatively more importance to striving for prolonged survival. Contrary to our expectation, no association was found between scores on the two scales and time tradeoff utility scores. The QQ Questionnaire can be used in research settings to study patient attitudes and the stability and determinants of patients' preferences.
在权衡肿瘤治疗的益处和副作用时，患者的观点至关重要。对于患者的偏好和态度，我们了解得很少。作者设计了一份简短问卷，以评估患者对于生活质量与生命长度或数量之间权衡的态度（QQ问卷）。结果表明，该问卷适用于各类癌症患者群体。在一项因素分析中，该问卷显示由两个因素组成，即一个Q（质量）因素和一个L（长度）因素。Q量表和L量表（各由四个项目组成）的克朗巴哈系数值分别为0.68和0.79。年轻患者和有孩子的患者相对更重视延长生存期。与我们的预期相反，两个量表的得分与时间权衡效用得分之间未发现关联。QQ问卷可用于研究环境中，以研究患者的态度以及患者偏好的稳定性和决定因素。
