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Opening doors: improving access to hospice and specialist palliative care services by members of the black and minority ethnic communities. Commentary on palliative care.打开大门:改善黑人和少数族裔社区成员获得临终关怀和专科姑息治疗服务的机会。关于姑息治疗的评论
Br J Cancer Suppl. 1996 Sep;29:S51-3.
2
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Association of Care at Minority-Serving vs Non-Minority-Serving Hospitals With Use of Palliative Care Among Racial/Ethnic Minorities With Metastatic Cancer in the United States.美国少数民族服务医院与非少数民族服务医院之间的护理关系与少数民族转移性癌症患者姑息治疗的使用情况。
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Culturally sensitive neonatal palliative care: a critical review.具有文化敏感性的新生儿姑息治疗:一项批判性综述。
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Hospice care access inequalities: a systematic review and narrative synthesis.临终关怀服务可及性不平等:系统评价和叙述性综合。
BMJ Support Palliat Care. 2022 Jun;12(2):142-151. doi: 10.1136/bmjspcare-2020-002719. Epub 2021 Feb 19.
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Social support for South Asian Muslim parents with life-limiting illness living in Scotland: a multiperspective qualitative study.为居住在苏格兰的身患绝症的南亚穆斯林父母提供的社会支持:一项多视角定性研究。
BMJ Open. 2014 Feb 6;4(2):e004252. doi: 10.1136/bmjopen-2013-004252.
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Challenges of mediated communication, disclosure and patient autonomy in cross-cultural cancer care.跨文化癌症护理中中介沟通、披露和患者自主性的挑战。
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Appraisal of literature reviews on end-of-life care for minority ethnic groups in the UK and a critical comparison with policy recommendations from the UK end-of-life care strategy.英国少数民族临终关怀文献评价及与英国临终关怀策略政策建议的批判性比较
BMC Health Serv Res. 2011 Jun 2;11:141. doi: 10.1186/1472-6963-11-141.
6
Vulnerability and access to care for South Asian Sikh and Muslim patients with life limiting illness in Scotland: prospective longitudinal qualitative study.苏格兰南亚锡克教和穆斯林晚期疾病患者的脆弱性及医疗服务可及性:前瞻性纵向定性研究
BMJ. 2009 Feb 3;338:b183. doi: 10.1136/bmj.b183.
7
Palliative care needs of minorities.少数群体的姑息治疗需求。
BMJ. 2003 Jul 26;327(7408):176-7. doi: 10.1136/bmj.327.7408.176.
8
Evidence based palliative care. There is some evidence-and there needs to be more.循证姑息治疗。已有一些证据——但还需要更多。
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本文引用的文献

1
Which patients with terminal cancer are admitted from home care?哪些晚期癌症患者是从家庭护理机构收治入院的?
Palliat Med. 1994;8(3):197-210. doi: 10.1177/026921639400800303.
2
Can home care maintain an acceptable quality of life for patients with terminal cancer and their relatives?居家护理能否为晚期癌症患者及其亲属维持可接受的生活质量?
Palliat Med. 1994;8(3):183-96. doi: 10.1177/026921639400800302.
3
Enabling more dying people to remain at home.让更多临终患者能够留在家中。
BMJ. 1993 Oct 9;307(6909):915-8. doi: 10.1136/bmj.307.6909.915.
4
Reducing hospital beds for patients with advanced cancer.
Lancet. 1994 Aug 6;344(8919):409. doi: 10.1016/s0140-6736(94)91437-0.

打开大门:改善黑人和少数族裔社区成员获得临终关怀和专科姑息治疗服务的机会。关于姑息治疗的评论

Opening doors: improving access to hospice and specialist palliative care services by members of the black and minority ethnic communities. Commentary on palliative care.

作者信息

Gaffin J, Hill D, Penso D

机构信息

National Council for Hospice & Specialist Palliative Care Services, London.

出版信息

Br J Cancer Suppl. 1996 Sep;29:S51-3.

PMID:8782800
原文链接:https://pmc.ncbi.nlm.nih.gov/articles/PMC2149863/
Abstract

To put Council's project on improving access to hospice and specialist palliative care services by members of the black and minority ethnic communities into context, palliative care will be defined, and the scope of palliative care services currently available in the UK outlined. Palliative care is the active total care of patients whose disease no longer responds to curative treatment. It is provided through a network of home-care, day-care, hospital support and hospital or hospice based in-patient services. These services are accessed mainly through GPs or hospital consultants and the extent to which people are referred depends on the knowledge of hospital consultants and GPs, and their perception of the value of the palliative care service to their patients. Council's project on improving access was supported by Cancer Relief Macmillan Fund and Help the Hospices as well as receiving a grant from the NHS Ethnic Minorities Unit. The report describes how the specialist palliative care services are currently provided in three areas with high minority ethnic populations and contains a series of recommendations around ethnic monitoring, equal opportunities strategies, staff training, communications and the provision of a more culturally sensitive service provision.

摘要

为了更好地理解理事会关于改善黑人和少数族裔社区成员获得临终关怀和专科姑息治疗服务机会的项目,本文将对姑息治疗进行定义,并概述英国目前提供的姑息治疗服务范围。姑息治疗是对疾病已无法通过治愈性治疗得到缓解的患者提供的积极全面护理。它通过家庭护理、日间护理、医院支持以及基于医院或临终关怀机构的住院服务网络来提供。这些服务主要通过全科医生(GP)或医院顾问获得,人们被转诊的程度取决于医院顾问和全科医生的知识,以及他们对姑息治疗服务对其患者价值的认知。理事会关于改善服务可及性的项目得到了癌症救助麦克米伦基金和临终关怀救助组织的支持,同时还获得了国民保健服务体系(NHS)少数族裔部门的一笔拨款。该报告描述了目前在少数族裔人口较多的三个地区如何提供专科姑息治疗服务,并包含了一系列关于种族监测、平等机会策略、员工培训、沟通以及提供更具文化敏感性服务的建议。