Sterkenburg C A, King B, Woodward C A
Chedoke-McMaster Hospitals, Hamilton, Ontario, Canada.
J Palliat Care. 1996 Spring;12(1):18-25.
The McMaster Quality of Life Scale (MQLS) was developed to measure the quality of life in a palliative patient population. This paper describes the tool and its psychometric properties. Palliative stage patients could assess their condition using this tool (r = 0.84; 95% Cl 0.76-0.94). Although ratings by different raters (patient, family, staff) were correlated, systematic differences were found by source of rating, which suggests that proxy rating (substituting family or staff ratings for a patient rating) should be avoided. The MQLS was sensitive to changes in the patient's quality of life. Neither age nor sex of patient influenced total score obtained. Persons close to death rated their quality of life as being poorer than those who were alive at the end of the data collection period. People who needed to have the MQLS read to them rated their quality of life somewhat lower than patients who could complete the task by themselves. Staff-rated MQLS scores correlated significantly with the staff-rated Spitzer Quality of Life Index. This study suggests the MQLS is a reliable and valid measure of quality of life during the palliative phase.
麦克马斯特生活质量量表（MQLS）旨在测量姑息治疗患者群体的生活质量。本文介绍了该工具及其心理测量特性。姑息治疗阶段的患者可以使用此工具评估自身状况（r = 0.84；95%置信区间0.76 - 0.94）。尽管不同评分者（患者、家属、工作人员）的评分具有相关性，但发现评分来源存在系统性差异，这表明应避免采用代理评分（用家属或工作人员评分替代患者评分）。MQLS对患者生活质量的变化较为敏感。患者的年龄和性别均不影响所得总分。临近死亡的人对其生活质量的评分低于数据收集期结束时仍在世的人。需要他人为其朗读MQLS的患者对自身生活质量的评分略低于能够自行完成该任务的患者。工作人员评定的MQLS分数与工作人员评定的斯皮策生活质量指数显著相关。本研究表明，MQLS是姑息治疗阶段生活质量的可靠且有效的测量工具。
