Dow K H, Ferrell B R, Leigh S, Ly J, Gulasekaram P
University of Central Florida, Orlendo, FL, USA.
Breast Cancer Res Treat. 1996;39(3):261-73. doi: 10.1007/BF01806154.
Attention to the quality of life (QOL) among long-term of breast cancer is long overdue. Modest improvements in overall survival have led to a greater emphasis on how women are living with the disease. The purpose of this paper is to report the results of a descriptive study that evaluated the quality of life of 294 breast cancer survivors, and to review the continuum of positive and negative QOL outcomes in this population. Members of the National Coalition for Cancer Survivorship (NCCS) were surveyed and received two QOL instruments: the Quality of Life-Cancer Survivors Tool (QOL-CS) and the Functional Assessment of Cancer Therapy (FACT-G), and a demographic data tool. The main research variables were the subscales (Physical, Psychological, Social, and Spiritual Well-being) and individual items of the QOL-CS and the FACT-G. Results indicated that: a) fatigue, aches and pains, and sleep problems were persistent after treatment ended; b) psychological distress from cancer diagnosis and treatment, and fear of recurrent, metastatic, and recurrent disease were problematic over time; c) family distress, sexuality, and family burden issues were of greatest social concern; and d) uncertainty over the future plagued breast cancer survivors long-term. Breast cancer survivors also reported good outcomes in hopefulness, having a life purpose, and having a positive change after the treatment.
breast cancer survivors experienced long-term changes after completion of treatment which affected overall quality of life. However, many positive benefits were also gained which helped to balance the worse outcomes.
长期以来，乳腺癌患者的生活质量（QOL）一直未得到应有的关注。总体生存率的适度提高使得人们更加重视女性与疾病共存的方式。本文旨在报告一项描述性研究的结果，该研究评估了294名乳腺癌幸存者的生活质量，并回顾了该人群生活质量的正负连续结果。对全国癌症幸存者联盟（NCCS）的成员进行了调查，并向他们发放了两份生活质量评估工具：癌症幸存者生活质量工具（QOL-CS）和癌症治疗功能评估（FACT-G），以及一份人口统计学数据工具。主要研究变量是QOL-CS和FACT-G的子量表（身体、心理、社会和精神健康）以及单项。结果表明：a）治疗结束后，疲劳、疼痛和睡眠问题仍然存在；b）随着时间的推移，癌症诊断和治疗带来的心理困扰以及对复发、转移和复发性疾病的恐惧成为问题；c）家庭困扰、性问题和家庭负担问题是最受社会关注的；d）对未来的不确定性长期困扰着乳腺癌幸存者。乳腺癌幸存者还报告了在希望、有生活目标以及治疗后有积极改变方面的良好结果。
乳腺癌幸存者在治疗完成后经历了长期变化，这些变化影响了总体生活质量。然而，也获得了许多积极益处，有助于平衡较差的结果。
