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乳腺癌幸存者:重返工作岗位面临的问题

Surviving breast cancer: a problematic work re-entry.

作者信息

Carter B J

出版信息

Cancer Pract. 1994 Mar-Apr;2(2):135-40.

PMID:8055015
Abstract

This article presents a paradigm case of a problematic work re-entry experience of a breast cancer survivor (Kathy). The case was drawn from a qualitative descriptive study of 25 long-term survivors of breast cancer. The study describes the lived experience and practical "know how" of survivors. Study participants completed three in-depth process interviews that were transcribed and analyzed for common themes. The paradigm case presented here is one of five paradigms that emerged from the data. The case demonstrates the profound impact of a negative work re-entry experience on a cancer survivor's reformulating sense of self. In addition to pericarditis and lymphedema, Kathy experienced long-term emotional distress. Although work provided a primary source of meaning, Kathy ultimately gave up her desire to return to work. Predominant features of the case include: a breach of confidentiality of medical information in the work setting; absence of resources and support to assist with work re-entry and the management of social stigma; difficulty in talking with colleagues and others about her health; and difficulty in asking for and receiving assistance. The understandings set forth from Kathy's experience can guide clinicians to explore the meaning of work in the lives of their patients and can encourage the development and use of work re-entry programs.

摘要

本文介绍了一位乳腺癌幸存者(凯西)工作重新融入经历出现问题的典型案例。该案例取自一项对25名乳腺癌长期幸存者的定性描述性研究。该研究描述了幸存者的生活经历和实用的“诀窍”。研究参与者完成了三次深入的过程访谈,访谈内容经转录后进行分析以找出共同主题。这里呈现的典型案例是从数据中浮现出的五个范例之一。该案例展示了负面的工作重新融入经历对癌症幸存者自我重塑感的深远影响。除了心包炎和淋巴水肿,凯西还经历了长期的情绪困扰。尽管工作是意义的主要来源,但凯西最终还是放弃了重返工作的愿望。该案例的主要特征包括:工作场所中医疗信息的保密性被泄露;缺乏协助工作重新融入和应对社会污名化的资源与支持;难以与同事及其他人谈论自己的健康状况;以及难以寻求和获得帮助。从凯西的经历中得出的认识可以指导临床医生探索工作在其患者生活中的意义,并鼓励制定和使用工作重新融入计划。

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