Boland D L, Sims S L
Indiana University School of Nursing, Indianapolis, USA.
Image J Nurs Sch. 1996 Spring;28(1):55-8. doi: 10.1111/j.1547-5069.1996.tb01179.x.
Home caregivers play an increasingly important role in providing health services for family members. Although many studies have been done to measure burden and related concepts, few studies have examined holistically the caregiving experiences. A grounded-theory design was used to better understand the caregiving experience from the perspective of caregivers. Seventeen families from a metropolitan intermountain western area comprised the sample. Recipients of care ranged in age from 14 months to 87 years. People with documented mental illness, dementia, or Alzheimer's disease were excluded from the sample. Interviews were conducted in participants' homes. Data were analyzed through constant comparative analysis. The central idea emerging from the data was caregiving as a solitary journey. Burden, responsibility, isolation, and commitment shaped the context of the journey.
家庭照顾者在为家庭成员提供健康服务方面发挥着越来越重要的作用。尽管已经进行了许多研究来衡量负担及相关概念，但很少有研究从整体上考察照顾经历。本研究采用扎根理论设计，以便从照顾者的角度更好地理解照顾经历。来自西部山间大都市地区的17个家庭构成了样本。受照顾者的年龄从14个月到87岁不等。有精神疾病、痴呆症或阿尔茨海默病记录的人被排除在样本之外。访谈在参与者家中进行。通过持续比较分析对数据进行分析。数据中浮现出的核心观点是，照顾是一段孤独的旅程。负担、责任、孤立和承诺塑造了这段旅程的背景。
