我们应该期待什么？乌干达农村地区艾滋病患者的家庭护理。

How much should we expect? Family caregiving of AIDS patients in rural Uganda.

作者信息

Kipp Walter, Tindyebwa Denis, Karamagi Edna, Rubaale Tom

机构信息

Department of Public Health Sciences, School of Public Health, University of Alberta, Edmonton, Canada.

出版信息

J Transcult Nurs. 2007 Oct;18(4):358-65. doi: 10.1177/1043659607305192.

DOI:10.1177/1043659607305192

PMID:17911576

Abstract

The aim of this study was to measure the burden of care for family caregivers of AIDS patients. A cross-sectional exploratory design was used to describe the care experiences of family caregivers of AIDS care recipients. A questionnaire was used to interview 120 family caregivers of AIDS patients from four rural areas in western Uganda. The questions asked were related to 12 domains of family caregiving. Care burden scores of caregivers were calculated. It was found that care burden scores were high in all domains except those regarding relationships within the families and substance abuse. Serious work overload and low health status were reported. The high burden of caregiving puts family caregivers at risk for decreased health status and increased social isolation and depression.

摘要

本研究的目的是衡量艾滋病患者家庭照顾者的护理负担。采用横断面探索性设计来描述艾滋病患者家庭照顾者的护理经历。通过问卷调查对乌干达西部四个农村地区的120名艾滋病患者家庭照顾者进行了访谈。所提问题涉及家庭护理的12个领域。计算了照顾者的护理负担得分。结果发现，除了家庭关系和药物滥用方面，其他所有领域的护理负担得分都很高。报告显示存在严重的工作负担过重和健康状况不佳的情况。高护理负担使家庭照顾者面临健康状况下降、社会隔离增加和抑郁的风险。