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不和谐的丧失:捐赠者亲属的经历

Dissonant Loss: the experiences of donor relatives.

作者信息

Sque M, Payne S A

机构信息

Department of Psychology, University of Southampton, UK.

出版信息

Soc Sci Med. 1996 Nov;43(9):1359-70. doi: 10.1016/0277-9536(96)00002-0.

DOI:10.1016/0277-9536(96)00002-0
PMID:8913005
Abstract

Narrative type interviews were carried out with a purposive sample of 24 relatives of organ donors. Relatives were recruited through 3 Regional transplant co-ordinating centres in England. The study examined in-depth the relatives': emotional reactions to the death and donation, perceptions of the decision-making process, assessment of the problems donation caused for them, as well as the benefits it provided. An understanding of what the experience meant to them was elicited, as was the identification of their needs. The interviews were audiotaped and transcribed. The transcripts were analysed using a grounded theory approach, based on the constant comparative method. Themes emerging from the data were named to form categories. Categories were defined and integrated around the central theme of the research to form an analytical version of the story. Donor relatives' experiences were found to revolve around a process of conflict and resolution. Their experience is explained as a theory of "Dissonant Loss".

摘要

对24位器官捐献者的亲属进行了立意抽样的叙事式访谈。这些亲属是通过英格兰的3个地区移植协调中心招募的。该研究深入考察了亲属对死亡和捐献的情绪反应、对决策过程的看法、对捐献给他们带来的问题的评估以及捐献带来的益处。了解了这段经历对他们意味着什么,以及确定了他们的需求。访谈进行了录音和转录。使用扎根理论方法,基于持续比较法对转录文本进行分析。从数据中浮现的主题被命名以形成类别。围绕研究的中心主题对类别进行定义和整合,以形成故事的分析版本。发现捐献者亲属的经历围绕着一个冲突与解决的过程展开。他们的经历被解释为一种“失调性损失”理论。

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