Payne S A, Langley-Evans A, Hillier R
School of Occupational Therapy and Physiotherapy, University of Southampton, UK.
Palliat Med. 1996 Oct;10(4):307-12. doi: 10.1177/026921639601000406.
The literature suggests that health professionals working in palliative care have developed an idealised concept of dying which has been labelled the 'good' death. This paper reports the results of a preliminary qualitative study which compared the concepts of a 'good' death used by patients and staff in a palliative care unit. Semistructured interviews designed to elicit perceptions of 'good' and 'bad' deaths were conducted with 18 patients and 20 health professionals. The transcribed interviews were content analysed. There were major differences between the views of patients and staff. The patients' descriptions of a "good' death were diverse and included: dying in one's sleep, dying quietly, with dignity, being pain free and dying suddenly. In comparison, staff characterised a "good' death in terms of adequate symptom control, family involvement, peacefulness and lack of distress, while a "bad' death was described as involving uncontrolled symptoms, lack of acceptance and being young. The findings suggest that patients and staff differ in their conceptualisations of a "good' death.
文献表明，从事姑息治疗的医护人员形成了一种理想化的死亡概念，即所谓的“善终”。本文报告了一项初步定性研究的结果，该研究比较了姑息治疗病房中患者和医护人员对“善终”的概念。对18名患者和20名医护人员进行了半结构化访谈，旨在引出对“善终”和“恶终”的看法。对转录后的访谈进行了内容分析。患者和医护人员的观点存在重大差异。患者对“善终”的描述多种多样，包括：在睡眠中去世、安静地去世、有尊严地去世、无痛苦地去世以及突然去世。相比之下，医护人员将“善终”描述为症状得到充分控制、家人参与、平静且无痛苦，而“恶终”则被描述为症状失控、不被接受以及患者年轻。研究结果表明，患者和医护人员对“善终”的概念理解不同。
