癌症患者信息。个性化会有影响吗？初步研究结果及正在进行的随机试验。
Information for patients with cancer. Does personalization make a difference? Pilot study results and randomised trial in progress.
作者信息
Jones R, Pearson J, Cawsey A, Barrett A
机构信息
Dept. Public Health, University of Glasgow, Scotland.
出版信息
Proc AMIA Annu Fall Symp. 1996:423-7.
Abstract
Although there are a number of groups working on the provision of personalized patient information there has been little evaluation. We have developed and piloted a method of giving patients on-line access to their own medical records with associated explanations. We are comparing, in a randomised trial, personalized with general computer based information for patients undergoing radiotherapy for cancer. We present results from the pilot study and the evaluation methods to be employed.
摘要
尽管有许多团队致力于提供个性化的患者信息，但相关评估却很少。我们开发并试行一种让患者在线访问自己的病历及相关解释的方法。在一项随机试验中，我们正在为癌症放疗患者比较个性化信息与基于一般计算机的信息。我们展示了试点研究的结果以及将要采用的评估方法。
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本文引用的文献
1
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Clin Electroencephalogr. 1993 Apr;24(2):93-9. doi: 10.1177/155005949302400211.
2
Use of a community-based touch-screen public-access health information system.
Health Bull (Edinb). 1993 Jan;51(1):34-42.
3
Reducing hospital admission through computer supported education for asthma patients. Grampian Asthma Study of Integrated Care (GRASSIC).通过计算机辅助教育减少哮喘患者的住院率。格兰扁地区哮喘综合护理研究（GRASSIC）。
BMJ. 1994 Feb 26;308(6928):568-71. doi: 10.1136/bmj.308.6928.568.
4
Interactive individualization: patient counselling and drug information supported by knowledge systems.交互式个体化：由知识系统支持的患者咨询与药物信息
Pharm World Sci. 1994 Jun 10;16(3):154-60. doi: 10.1007/BF01877486.
5
A randomised trial of three methods of giving information about prenatal testing.三种产前检查信息告知方法的随机试验
BMJ. 1995 Oct 28;311(7013):1127-30. doi: 10.1136/bmj.311.7013.1127.
6
The hospital anxiety and depression scale.医院焦虑抑郁量表。
Acta Psychiatr Scand. 1983 Jun;67(6):361-70. doi: 10.1111/j.1600-0447.1983.tb09716.x.
7
Lay understanding of medical terminology.
J Fam Pract. 1983 Aug;17(2):277-9.
8
A computer-assisted register and information system for diabetes.
Methods Inf Med. 1983 Jan;22(1):4-14.
9
Clinical and cost-saving effects of psychoeducational interventions with surgical patients: a meta-analysis.
Res Nurs Health. 1986 Jun;9(2):89-105. doi: 10.1002/nur.4770090204.
10
Censoring of patient-held records by doctors.
J R Coll Gen Pract. 1988 Mar;38(308):117-8.
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