Guyatt G H, Juniper E F, Griffith L E, Feeny D H, Ferrie P J
Department of Clinical Epidemiology and Biostatistics, McMaster University, Hamilton, Ontario, Canada.
Pediatrics. 1997 Feb;99(2):165-8. doi: 10.1542/peds.99.2.165.
To explore children's and parents' assessment of children's asthma.
Prospective 2-month cohort study in which children and parents were reviewed at baseline and 1-month intervals.
Mid-sized, English-speaking, industrial community serving an urban and regional rural population.
Fifty-two children, 7 to 17 years old, with a wide range of asthma severity, and their parents.
We offered patients with inadequately controlled asthma additional inhaled steroid.
Children and parents provided global ratings of change in childhood symptoms and children completed spirometry and the Paediatric Asthma Quality of Life Questionnaire at clinic visits. Patients recorded peak flow rates, symptoms, and medication use in a daily diary. The diary symptom report, medication use, and spirometry were combined to form an asthma control score.
In children younger than 11, children's global rating of change in symptoms correlated strongly with changes in quality of life (0.54 to .67) but not with measures of airway caliber or asthma control, while parents' global ratings did not correlate with children's quality of life but showed moderate correlations with airway caliber (0.29 to .48) and asthma control (0.50). In children over the age of 11, correlations with all clinical variables were higher for their own than their parents' global ratings.
In children under 11, clinicians can gain complementary information from questioning children and parents. For children over 11, parents can provide little if any information beyond that obtained through questioning the child.
探讨儿童及其父母对儿童哮喘的评估。
为期2个月的前瞻性队列研究,在基线时以及之后每隔1个月对儿童及其父母进行复查。
一个中等规模、讲英语的工业社区,服务于城市和周边农村人口。
52名7至17岁、哮喘严重程度各异的儿童及其父母。
我们为哮喘控制不佳的患者提供额外的吸入性类固醇药物。
儿童及其父母对儿童症状变化进行整体评分,儿童在门诊就诊时完成肺功能测定以及《儿童哮喘生活质量问卷》。患者在日常日记中记录峰值流速、症状和药物使用情况。将日记中的症状报告、药物使用情况和肺功能测定结果综合起来形成哮喘控制评分。
在11岁以下的儿童中,儿童对症状变化的整体评分与生活质量变化密切相关(0.54至0.67),但与气道管径或哮喘控制指标无关,而父母的整体评分与儿童的生活质量无关,但与气道管径(0.29至0.48)和哮喘控制(0.50)呈中度相关。在11岁以上的儿童中,他们自己的整体评分与所有临床变量的相关性高于父母的整体评分。
对于11岁以下的儿童,临床医生通过询问儿童及其父母可获得补充信息。对于11岁以上的儿童,父母提供的信息很少,甚至不比通过询问儿童获得的信息多。