Olsson I, Chaplin J, Ekstedt J
Barnkliniken, Sahlgrenska Universitetssjukhuset/Ostra.
Lakartidningen. 1997 Jul 9;94(28-29):2572-5.
Many people with epilepsy experience the need for more information concerning their condition and some people require, at times, greater access to rehabilitation services than has previously been available. Information and support may also be required by the family, friends and work colleagues of the patient. Research indicates that rehabilitation needs, for the patient, can arise in relation to poor self-esteem, overprotection as a child, low expectations, reduced cognitive abilities and stigma perceived or experienced in the family, in society, and at work. Successful rehabilitation is individualistic and should therefore be based on an assessment of the individual's needs. Only on the basis of this can realistic goals be identified. In the cases where intensive multidisciplinary rehabilitation is required a thorough medical assessment will also be needed in order to formulate realistic goals. Achievement of these goals may involve input from psychological, neuropsychological, pedagogical, social, employment and family orientated perspectives. Specialists in these areas must be included within, or co-ordinated by, the epilepsy team or rehabilitation service. In Sweden hospital based epilepsy-teams have added psycho-social rehabilitation aspects in their responsibilities and other rehabilitation services have recently begun to focus on the needs of people with epilepsy. This has led to a range of different rehabilitation models being available. The need to develop improved epilepsy rehabilitation services was identified in the 1970s and has recently received short-term funding support to develop new services and build up expertise. It is hoped that in the future these services will continue to find support at both the county and national levels.
许多癫痫患者都希望获得更多有关自身病情的信息,有些人有时需要比以往更多地获得康复服务。患者的家人、朋友和同事也可能需要信息和支持。研究表明,患者的康复需求可能源于自卑、儿时受到过度保护、期望过低、认知能力下降以及在家庭、社会和工作中感受到的耻辱感。成功的康复是因人而异的,因此应该基于对个人需求的评估。只有在此基础上才能确定现实的目标。在需要强化多学科康复的情况下,还需要进行全面的医学评估,以便制定现实的目标。实现这些目标可能需要心理学、神经心理学、教育学、社会学、就业和家庭等方面的投入。这些领域的专家必须纳入癫痫治疗团队或康复服务机构,或由其进行协调。在瑞典,以医院为基础的癫痫治疗团队已将心理社会康复方面纳入其职责范围,其他康复服务机构最近也开始关注癫痫患者的需求。这导致了一系列不同的康复模式可供选择。改善癫痫康复服务的需求在20世纪70年代就已被认识到,最近还获得了短期资金支持,以开发新服务并积累专业知识。希望未来这些服务在县和国家层面都能继续得到支持。