Janus M, Goldberg S
Psychiatry Research, Hospital for Sick Children, Toronto, Ontario, Canada.
J Paediatr Child Health. 1997 Jun;33(3):219-25. doi: 10.1111/j.1440-1754.1997.tb01583.x.
To examine behaviour problems of children in families where one child was diagnosed with congenital heart disease (CHD), in relation to the intensity of treatment required for the CHD.
Treatment intensity was based on patients' hospitalizations, surgical operations, current treatment, frequency of check-ups and finality of surgical repair. Mothers of 29 patients and 43 healthy siblings (4-14 years old), and a sub-sample of fathers, reported on behaviour problems of their children and rated the frequency of considering patient's CHD while performing routine child care in nine areas of family life (accommodation of illness).
High treatment intensity was associated with high accommodation of illness and elevated behaviour problems among patients. In contrast, siblings in families where treatment intensity was low, but accommodation of illness high were at most risk for behaviour problems.
Treatment intensity has a markedly different impact on behaviour problems of patients and healthy siblings. It is important for parents and healthcare professionals to provide both patients and siblings with information about the patient's medical condition, regardless how much treatment that condition may need.
研究家中有一个孩子被诊断患有先天性心脏病（CHD）的家庭中儿童的行为问题，以及与CHD所需治疗强度的关系。
治疗强度基于患者的住院情况、手术操作、当前治疗、检查频率和手术修复的最终情况。29名患者的母亲和43名健康兄弟姐妹（4至14岁），以及部分父亲样本，报告了他们孩子的行为问题，并对在家庭生活的九个方面（疾病适应）进行日常儿童护理时考虑患者CHD的频率进行了评分。
高治疗强度与患者较高的疾病适应度和行为问题增加有关。相比之下，在治疗强度低但疾病适应度高的家庭中，兄弟姐妹出现行为问题的风险最高。
治疗强度对患者和健康兄弟姐妹的行为问题有明显不同的影响。对于父母和医疗保健专业人员来说，无论病情需要多少治疗，都要向患者和兄弟姐妹提供有关患者病情的信息，这一点很重要。
