Redshaw Sarah, Wilson Valerie
The Children's Hospital at Westmead, Australia.
J Child Health Care. 2012 Mar;16(1):53-61. doi: 10.1177/1367493511423649. Epub 2012 Feb 3.
In interviews with parents for the evaluation of a cardiac ward programme in a children's hospital, a number of parents mentioned the role of the Heart Beads Program in including siblings in the hospitalisation of the child with congenital heart condition (CHD). Inclusion of siblings in the events surrounding the child with the cardiac condition was of two kinds: (a) touching and explaining about the beads and the child's condition and (b) involvement in collecting and threading the beads. Discussion of the needs of siblings suggests that inclusion of siblings in activities related to the care and understanding of the CHD child as well as the creation and shaping of the family narrative is important. These cases illustrate the different ways in which siblings are involved and acknowledged and how involvement can be facilitated by a programme like Heart Beads.
在儿童医院对一项心脏病房项目进行评估的家长访谈中，许多家长提到了“心脏珠项目”在让兄弟姐妹参与患有先天性心脏病（CHD）儿童住院治疗过程中的作用。让兄弟姐妹参与围绕患有心脏病儿童的相关活动有两种方式：（a）触摸并解释珠子以及孩子的病情；（b）参与收集和穿珠子。对兄弟姐妹需求的讨论表明，让兄弟姐妹参与与先天性心脏病儿童的护理和理解相关的活动，以及参与家庭故事的创作和塑造非常重要。这些案例说明了兄弟姐妹参与和被认可的不同方式，以及像“心脏珠”这样的项目如何促进这种参与。
