Cavallo M C, Fattore G
CeRGAS and SDA, Università L. Bocconi, Milan, Italy.
Alzheimer Dis Assoc Disord. 1997 Dec;11(4):184-90.
The purpose of this study was to measure resource consumption associated with the provision of nonmedical care to noninstitutionalized patients with Alzheimer disease (AD) residing in the Lombardy Region of Italy. A questionnaire was mailed to 1,501 caregivers who sought advice from the "Federation Alzheimer Italia" in 1995. On the basis of 616 returned questionnaires, the authors estimated that a patient with AD requires 18 hours per week of paid nonmedical services and 45 hours per week of personal care provided by a primary caregiver. Primary caregivers are more likely to be women, spouses, and retired. Almost 7 of 10 patients are supported by at least a second caregiver. Annual expenditure for nonmedical cost per patient with AD is estimated to be L 13,388,000 (U.S. $8,218). Using the replacement cost approach, the authors estimated the economic cost of informal (unpaid) care to be L 72,877,000 (U.S. $44,736). Despite some limitations in the design of the survey, this first Italian study on primary data highlights the impressive economic burden of AD on families. It also shows that AD puts many Italian families at great financial risk. Adequate and timely funding arrangements should be urgently found to make resources available to future generations of patients.
本研究的目的是衡量为居住在意大利伦巴第地区的非机构化阿尔茨海默病（AD）患者提供非医疗护理所涉及的资源消耗。1995年，一份问卷被邮寄给了1501名向“意大利阿尔茨海默病联合会”寻求建议的护理人员。根据616份回收的问卷，作者估计，一名AD患者每周需要18小时的付费非医疗服务以及由主要护理人员提供的每周45小时的个人护理。主要护理人员更有可能是女性、配偶且已退休。每10名患者中几乎有7名至少得到一名二级护理人员的支持。估计每名AD患者的非医疗费用年度支出为1338.8万里拉（8218美元）。使用替代成本法，作者估计非正式（无薪）护理的经济成本为7287.7万里拉（44736美元）。尽管该调查的设计存在一些局限性，但这项关于原始数据的意大利首次研究突出了AD给家庭带来的巨大经济负担。它还表明，AD使许多意大利家庭面临巨大的经济风险。应紧急找到充足且及时的资金安排，以便为未来的患者后代提供资源。
