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与普通人群相比,脊髓损伤患者的生活满意度。

Life satisfaction of persons with spinal cord injury compared to a population group.

作者信息

Post M W, Van Dijk A J, Van Asbeck F W, Schrijvers A J

机构信息

Julius Centre for Patient Oriented Research, Utrecht University, The Netherlands.

出版信息

Scand J Rehabil Med. 1998 Mar;30(1):23-30. doi: 10.1080/003655098444282.

Abstract

Life satisfaction is thought to be the subjective part of quality of life, i.e. the feelings of the persons concerned about their functioning and circumstances. In this study, life satisfaction of spinal cord-injured persons living in the community is compared to life satisfaction of a population group. Respondents were a nationwide sample of 318 persons with spinal cord injury (response 60%) and 507 inhabitants of a large city in The Netherlands (response 42%). Life satisfaction was measured using the Life Satisfaction Questionnaire, containing one question about general life satisfaction and eight questions about domain-specific life satisfaction. Mean scores of general life satisfaction and of satisfaction with self-care ability, leisure situation, vocational situation and sexual life were lower in persons with spinal cord injury than in the population group, but satisfaction with family life was higher. However, differences in general life satisfaction, satisfaction with leisure situation and with vocational situation could be attributed to differences in the composition of both groups. Satisfaction with self-care ability was lower in persons with tetraplegia than in persons with paraplegia, but we found no differences in other questions. Several relationships between life satisfaction and age and marital status existed, but they were more pronounced in the population group than in the group of persons with spinal cord injury. Time after injury and cause of injury were not related to life satisfaction variables. Uniformity in measurement instruments would facilitate comparisons between studies.

摘要

生活满意度被认为是生活质量的主观部分,即相关人员对自身功能和生活状况的感受。在本研究中,将居住在社区中的脊髓损伤患者的生活满意度与一个人群组的生活满意度进行了比较。受访者是来自全国的318名脊髓损伤患者样本(回复率60%)和荷兰一个大城市的507名居民(回复率42%)。使用生活满意度问卷来测量生活满意度,该问卷包含一个关于总体生活满意度的问题和八个关于特定领域生活满意度的问题。脊髓损伤患者在总体生活满意度以及自我护理能力、休闲状况、职业状况和性生活满意度方面的平均得分低于人群组,但家庭生活满意度更高。然而,总体生活满意度、休闲状况满意度和职业状况满意度的差异可归因于两组人群构成的差异。四肢瘫痪患者的自我护理能力满意度低于截瘫患者,但在其他问题上我们未发现差异。生活满意度与年龄和婚姻状况之间存在若干关系,但在人群组中比在脊髓损伤患者组中更为明显。受伤时间和受伤原因与生活满意度变量无关。测量工具的一致性将有助于不同研究之间的比较。

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