Loor H I
Vakgroep Huisartsgeneeskunde, Rijksuniversiteit Groningen.
Tijdschr Gerontol Geriatr. 1998 Apr;29(2):52-8.
The approach of the concept 'quality of life' in stroke research is often multi-dimensional; and the dimensions to be studied, are chosen by the researcher. To determine the most important dimensions or aspects of quality of life--from the point of view of stroke patients--we interviewed 75 patients one year, and 83 patients two years after their stroke. These interviews were part of a longterm follow-up of a cohort of 221 stroke patients. Seventy-five percent of both the one- and two-year survivors experienced a deterioration of quality of life. Autonomy appeared to be the most important aspect of quality of life, being spontaneously mentioned by 55% of 75 patients. Compared with the stroke patients, an age- and sex-matched group of 61 controls rated their quality of life more highly. For them, autonomy appeared to be less important, being spontaneously mentioned by 25% of 61 controls. Furthermore, stroke patients attached more importance to social contacts and activities and general health than controls. We suggest to lend more weight in research and medical care, to patients' priorities in quality of life.
在中风研究中，“生活质量”这一概念的研究方法通常是多维度的；研究维度由研究者选择。为了从中风患者的角度确定生活质量最重要的维度或方面，我们在患者中风一年后访谈了75名患者，两年后访谈了83名患者。这些访谈是对221名中风患者队列长期随访的一部分。一年和两年的幸存者中，75%的人生活质量出现了恶化。自主性似乎是生活质量最重要的方面，在75名患者中有55%的人自发提到了这一点。与中风患者相比，61名年龄和性别匹配的对照组对自己生活质量的评价更高。对他们来说，自主性似乎没那么重要，在61名对照组中有25%的人自发提到了这一点。此外，中风患者比对照组更重视社交联系与活动以及总体健康状况。我们建议在研究和医疗护理中，更加重视患者在生活质量方面的优先事项。
