Stewart H, Matthews T, Foley M, Aszkenasy O M
Department of Community and Child Health, South Tees Community & Mental Health NHS Trust, West Lane Hospital, Middlesbrough, UK.
Child Care Health Dev. 1998 May;24(3):185-94. doi: 10.1046/j.1365-2214.1998.00063.x.
This study examined the knowledge carers of children with epilepsy have of the condition and its management. It also examined their experience of medical services for their child and the attitude of staff at their schools. A school nursing sister using a semi-structured technique interviewed 48 carers of 53 children. A majority expressed dissatisfaction with outpatient medical care, especially that outpatient visits did not improve their knowledge of the condition or its treatment. Twenty-eight carers were not satisfied with the attitude of staff at schools. Ways to improve the service are discussed, including the role of the specialist community children's nurse and the need to see children with epilepsy in a dedicated clinic.
本研究调查了癫痫患儿照料者对该疾病及其治疗的了解情况。研究还考察了他们为孩子寻求医疗服务的经历以及学校工作人员的态度。一名学校护士采用半结构化访谈技术,对53名儿童的48名照料者进行了访谈。大多数人对门诊医疗护理表示不满,尤其是门诊就诊并未增进他们对病情或治疗方法的了解。28名照料者对学校工作人员的态度不满意。文中讨论了改善服务的方法,包括专科社区儿童护士的作用以及在专门诊所诊治癫痫患儿的必要性。