Shore C, Austin J, Musick B, Dunn D, McBride A, Creasy K
Indiana University School of Nursing, Indianapolis 46202, USA.
J Neurosci Nurs. 1998 Jun;30(3):169-74. doi: 10.1097/01376517-199806000-00004.
The Parent Report of Psychosocial Care was developed to address the concerns, needs for care and satisfaction with care received of parents of children with new-onset seizures. Parents were interviewed three months and six months after their child's first seizures using the instrument. Mothers especially identified continued needs for information and support and were worried about unlikely events such as brain tumors and death. The results from this study indicate that parents' needs for information and support need to be assessed at every encounter with the health care system during the first 6 months after the child's first seizure.
《心理社会护理家长报告》旨在解决新发性癫痫患儿家长的担忧、护理需求以及对所接受护理的满意度。使用该工具在患儿首次癫痫发作后的三个月和六个月对家长进行访谈。母亲们尤其指出持续需要信息和支持，并担心诸如脑瘤和死亡等不太可能发生的事件。这项研究的结果表明，在患儿首次癫痫发作后的前6个月内，每次与医疗保健系统接触时都需要评估家长对信息和支持的需求。
