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与确诊癫痫患者就业问题相关的因素。

Factors associated with the employment problems of people with established epilepsy.

作者信息

Chaplin J E, Wester A, Tomson T

机构信息

Department of Clinical Neuroscience, Karolinska Hospital, Stockholm, Sweden.

出版信息

Seizure. 1998 Aug;7(4):299-303. doi: 10.1016/s1059-1311(98)80022-8.

DOI:10.1016/s1059-1311(98)80022-8
PMID:9733405
Abstract

The employment experiences of 245 respondents with epilepsy as their main diagnosis were examined as part of a study into the rehabilitation needs of an epilepsy outpatient clinic. It was found that 9% of the sample was unemployed and a further 16% were in receipt of a disability pension. Patients with seizures in remission were more likely to be employed and less likely to have experienced job problems, to feel limited by the epilepsy or to experience stigma. Job problems per se were experienced by 35% of the population. Of those with uncontrolled seizures, 50% had had job problems; however, 22% thought that their current employment situation had not been unduly influenced by epilepsy. It was those respondents who were younger or who were diagnosed early with epilepsy who were most likely to perceive their current situation as a result of having epilepsy. The survey suggests that unemployment is not the major problem it was once thought to be but that discrimination at work is a more serious problem which could lead to under-employment and restricted career development. Career planning should be instigated early and employment services should include information, practical advice and emotional support.

摘要

作为对一家癫痫门诊康复需求研究的一部分,对245名以癫痫为主要诊断的受访者的就业经历进行了调查。结果发现,样本中有9%的人失业,另有16%的人领取残疾抚恤金。癫痫发作缓解的患者更有可能就业,且不太可能遇到工作问题、感觉受到癫痫限制或遭受歧视。35%的人本身经历过工作问题。在癫痫发作未得到控制的患者中,50%有工作问题;然而,22%的人认为他们目前的就业状况并未受到癫痫的过度影响。正是那些年龄较小或早期被诊断出患有癫痫的受访者最有可能将他们目前的状况归因于患有癫痫。调查表明,失业并非像人们曾经认为的那样是主要问题,但工作中的歧视是一个更严重的问题,可能导致就业不足和职业发展受限。应尽早开展职业规划,就业服务应包括信息、实用建议和情感支持。

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