Woodgate R L
University of Manitoba, Winnipeg, Canada.
J Pediatr Nurs. 1998 Aug;13(4):210-23. doi: 10.1016/S0882-5963(98)80048-1.
An exploratory, qualitative study with tenets from grounded theory was used to elicit detailed descriptions of adolescents' chronic illness experiences. The philosophy of symbolic interactionism guided this study. Understanding the adolescents' experiences included exploring adolescents' perspectives of the following: (1) what it is like to have a chronic illness, and (2) how they deal with having a chronic illness. A sample of 23 adolescents, 13 to 16 years of age, and diagnosed with either diabetes, asthma, arthritis, Crohn's disease, or ulcerative colitis participated. Data collection involved the adolescents participating in open-ended interviews. The constant comparative method was used to analyze all data from the interviews. The findings revealed that having a chronic illness made life more difficult for the adolescents. Adolescents experience extra effort, restriction, pain, and additional worries because of having a chronic illness. However, adolescents also clearly had ways to help them deal with their illness. These strategies and recommendations for practice and future research are discussed.
一项采用扎根理论原则的探索性定性研究，用于详细描述青少年的慢性病经历。象征互动主义哲学指导了这项研究。理解青少年的经历包括探索青少年对以下方面的看法：（1）患有慢性病是什么样的，以及（2）他们如何应对慢性病。23名年龄在13至16岁之间、被诊断患有糖尿病、哮喘、关节炎、克罗恩病或溃疡性结肠炎的青少年参与了样本。数据收集包括让青少年参与开放式访谈。采用持续比较法分析访谈中的所有数据。研究结果表明，患有慢性病使青少年的生活更加艰难。由于患有慢性病，青少年经历了额外的努力、限制、疼痛和更多的担忧。然而，青少年显然也有帮助他们应对疾病的方法。文中讨论了这些策略以及对实践和未来研究的建议。
