Santos M E, Castro-Caldas A, De Sousa L
Laboratório de Estudos de Linguagem, Centro de Estudos Egas Moniz, Hospital de Santa Maria, Lisboa, Portugal.
Brain Inj. 1998 Sep;12(9):759-67. doi: 10.1080/026990598122151.
Long-term consequences of head injury for patients and families are not well known, given the complexity of variables that have to be studied. Subject's self-experience is one of these less studied aspects. The purpose of this study is to examine the spontaneous complaints of long-term brain injured adult subjects to be compared to the impression of their relatives. A total of 48 chronic head trauma subjects were studied more than 6 years after injury together with a relative, usually a mother or wife. At the beginning of the interview the participants were asked to freely refer their present complaints. In general, relatives referred more complaints about the injured subjects than the injured subjects referred about themselves. This occurred in several domains: somatic, physical, cognitive, and behavioural. Memory problems were highly reported by both groups. Somatic complaints were more frequently reported by patients and behavioural problems were more often reported by relatives. Mothers and wives had different profiles or responses. Mothers' opinions were identical to those of their TBI sons in all domains. These different results must be taken into consideration so that the real needs of patients and relatives can be addressed.
鉴于必须研究的变量的复杂性，头部受伤对患者及其家庭的长期后果尚不为人所知。受试者的自我体验是这些较少研究的方面之一。本研究的目的是检查成年长期脑损伤受试者的自发主诉，并与他们亲属的印象进行比较。共有48名慢性头部创伤受试者在受伤6年多后与其亲属（通常是母亲或妻子）一起接受了研究。在访谈开始时，要求参与者自由提及他们目前的主诉。一般来说，亲属提及的关于受伤受试者的主诉比受伤受试者自己提及的更多。这在几个领域都有发生：躯体、身体、认知和行为。两组都高度报告了记忆问题。患者更频繁地报告躯体主诉，而亲属更常报告行为问题。母亲和妻子有不同的概况或反应。在所有领域，母亲的意见与她们患有创伤性脑损伤的儿子的意见一致。必须考虑到这些不同的结果，以便能够满足患者和亲属的实际需求。
