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向独立过渡:残疾青年及其照顾者面临的挑战。

Transitioning to independence: challenges for young people with disabilities and their caregivers.

作者信息

Blomquist K B, Brown G, Peersen A, Presler E P

机构信息

Shriners Hospital, Lexington, Kentucky, USA.

出版信息

Orthop Nurs. 1998 May-Jun;17(3):27-35.

PMID:9847815
Abstract

For all teens, the process of moving from childhood to adulthood is challenging. For young people with disabilities, transitioning to independence presents even more challenges. Barriers to successful transition for young people with disabilities include low expectations by parents and other significant people in the community, lack of knowledge of existing career and vocational education services, and lack of self-advocacy skills. This article provides an overview of issues related to transitioning to adult independence and offers suggestions for assessment, planning, and intervention that can help nurses be effective partners with families and other caregivers in transition efforts. Nurses caring for children with disabilities can help families see strengths in their children and develop realistic, developmentally-appropriate expectations for skill development, attitudes, and behaviors that will promote self-sufficiency in adulthood. Nurses can help families think about possibilities for independence and refer families to community resources that can help young people with disabilities pursue postsecondary education, obtain and maintain jobs, and live independently.

摘要

对于所有青少年来说,从童年迈向成年的过程都充满挑战。对于残疾青年而言,向独立过渡面临着更多挑战。残疾青年成功过渡的障碍包括父母及社区中其他重要人物的期望较低、对现有职业和职业教育服务缺乏了解以及缺乏自我倡导技能。本文概述了与向成人独立过渡相关的问题,并提供了评估、规划和干预建议,这些建议有助于护士在过渡工作中成为家庭和其他照顾者的有效伙伴。照顾残疾儿童的护士可以帮助家庭看到孩子的优势,并对有助于孩子在成年后实现自给自足的技能发展、态度和行为形成现实的、适合其发展阶段的期望。护士可以帮助家庭思考独立的可能性,并将家庭转介至社区资源,这些资源可以帮助残疾青年接受高等教育、获得并维持工作以及独立生活。

相似文献

1
Transitioning to independence: challenges for young people with disabilities and their caregivers.向独立过渡:残疾青年及其照顾者面临的挑战。
Orthop Nurs. 1998 May-Jun;17(3):27-35.
2
The Young Women's Program: A health and wellness model to empower adolescents with physical disabilities.《年轻女性计划》:一个赋予身体残疾青少年健康和幸福的模式。
Disabil Health J. 2010 Apr;3(2):125-9. doi: 10.1016/j.dhjo.2009.08.001. Epub 2009 Nov 18.
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The needs of young people with disabilities in transition from paediatric to adult services.残疾青少年从儿科服务过渡到成人服务的需求。
Eura Medicophys. 2005 Jun;41(2):111-23.
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Disability and the transition to adulthood: issues for the disabled child, the family, and the pediatrician.残疾与向成年期的过渡:残疾儿童、家庭及儿科医生面临的问题。
Curr Probl Pediatr. 1995 Jan;25(1):12-50. doi: 10.1016/s0045-9380(06)80013-7.
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Pediatric rehabilitation: 5. Transitioning teens with disabilities into adulthood.儿科康复:5. 帮助残疾青少年向成年过渡。
PM R. 2010 Mar;2(3):S31-7. doi: 10.1016/j.pmrj.2010.01.001.
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A process for developing community consensus regarding the diagnosis and management of attention-deficit/hyperactivity disorder.一个就注意力缺陷/多动障碍的诊断和管理达成社区共识的过程。
Pediatrics. 2005 Jan;115(1):e97-104. doi: 10.1542/peds.2004-0953.
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Transitions in the lives of young people with complex healthcare needs.有复杂医疗需求的年轻人生活中的转变。
Child Care Health Dev. 2008 Sep;34(5):567-75. doi: 10.1111/j.1365-2214.2008.00862.x.
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An emancipatory research on CBR and the barriers faced by persons with disabilities.一项关于社区康复及残疾人所面临障碍的解放性研究。
Disabil Rehabil. 2014;36(18):1502-7. doi: 10.3109/09638288.2013.800914. Epub 2013 Jun 13.
9
Health and independence of young adults with disabilities. Two years later.残疾青年的健康与独立性。两年后。
Orthop Nurs. 2007 Sep-Oct;26(5):296-309. doi: 10.1097/01.NOR.0000295957.71579.48.
10
Family pediatrics: report of the Task Force on the Family.家庭儿科学:家庭问题特别工作组报告
Pediatrics. 2003 Jun;111(6 Pt 2):1541-71.

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Life-Course Transitions Among Adolescents With and Without Disabilities: A Longitudinal Examination of Expectations and Outcomes.有残疾和无残疾青少年的人生历程转变:期望与结果的纵向研究。
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Assessment of parental disclosure of a 22q11.2 deletion syndrome diagnosis and implications for clinicians.
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Improving diabetes care for young people with type 1 diabetes through visual learning on mobile phones: mixed-methods study.通过手机视觉学习改善 1 型糖尿病青少年的糖尿病护理:混合方法研究。
J Med Internet Res. 2012 Aug 6;14(4):e111. doi: 10.2196/jmir.2155.
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Factors that promote or hinder young disabled people in work participation: a systematic review.促进或阻碍残疾青年参与工作的因素:一项系统综述。
J Occup Rehabil. 2009 Jun;19(2):129-41. doi: 10.1007/s10926-009-9169-0. Epub 2009 Mar 24.