Wicks M N, Milstead E J, Hathaway D K, Cetingok M
Colleges of Nursing and Social Work, University of Tennessee, Memphis, USA.
J Transpl Coord. 1998 Sep;8(3):170-6. doi: 10.7182/prtr.1.8.3.m780806r413th406.
Improved quality of life and physical functioning among renal transplant recipients have been documented; however, little of the literature has addressed the effects of transplantation on family caregivers. The purpose of this exploratory descriptive study was to characterize the level of subjective burden, quality of life, and self-rated health of caregivers who assist family members prior to transplantation as well as at 6 months following. The study sample included 19 caregivers of 19 renal transplant recipients. In general, caregiver burden, quality of life, and self-rated health did not improve following patients' transplants. In addition, 9 of 19 family caregivers reported increased burden. Because much of healthcare is family-based and greater reliance on family support seems inevitable, further studies are needed to examine the impact of transplantation on the family as well as the impact of the family on patients' posttransplant outcomes.
肾移植受者生活质量和身体机能的改善已有文献记载；然而，鲜有文献探讨移植对家庭照顾者的影响。这项探索性描述性研究的目的是描述在移植前及移植后6个月协助家庭成员的照顾者的主观负担水平、生活质量和自评健康状况。研究样本包括19名肾移植受者的19名照顾者。总体而言，患者移植后照顾者的负担、生活质量和自评健康状况并未改善。此外，19名家庭照顾者中有9名报告负担加重。由于大部分医疗保健是以家庭为基础的，而且似乎不可避免地要更多地依赖家庭支持，因此需要进一步研究来考察移植对家庭的影响以及家庭对患者移植后结果的影响。
