Roos L L, Nicol J P
Manitoba Centre for Health Policy and Evaluation, Department of Community Health Sciences, University of Manitoba, Winnipeg, Canada.
J Clin Epidemiol. 1999 Jan;52(1):39-47. doi: 10.1016/s0895-4356(98)00126-7.
Many studies of population health, clinical epidemiology, and health services can be supported by a population-based research registry. Such a registry accurately defines the health insurance status for each individual over many years, magnifying the effectiveness of a cross-sectional registry (typically relevant for only a short duration) used in the administration of a health insurance plan. A research registry can distinguish between "well" individuals (no contact with the health care system), loss to follow-up (ineligibility associated with leaving the insurance plan), loss of continuity (two or more unlinked registrations over time for the same person), and mortality. The Manitoba research registry was developed to facilitate longitudinal studies; working within strict confidentiality controls, identifiers for each individual known to Manitoba Health since 1970 can be retrieved and a single unique identifier assigned. Careful reporting of changes in family registration numbers has enabled tracing area of residence, marital status, and family characteristics; results are equivalent to a daily census of the province. This article provides details on source materials, design, and quality of the registry, highlighting its value both for the development of integrated population health information systems and for research in general.
许多关于人群健康、临床流行病学和卫生服务的研究都可以通过基于人群的研究登记系统得到支持。这样的登记系统能够准确界定多年来每个人的健康保险状况，增强了用于医疗保险计划管理的横断面登记系统（通常仅在短时间内相关）的有效性。研究登记系统可以区分“健康”个体（未与医疗保健系统接触）、失访（与退出保险计划相关的无资格状态）、连续性中断（同一人在不同时间有两个或更多不相关的登记）以及死亡情况。马尼托巴省的研究登记系统是为促进纵向研究而开发的；在严格的保密控制下，可以检索自1970年以来马尼托巴省卫生部门所知的每个个体的标识符，并分配一个唯一的标识符。对家庭登记号码变化的仔细报告使得能够追踪居住地区、婚姻状况和家庭特征；结果等同于该省的每日人口普查。本文详细介绍了登记系统的源材料、设计和质量，突出了其在综合人群健康信息系统开发以及一般研究方面所具有的价值。
