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1型糖尿病儿童及青少年家长的生活质量。

Quality of life for parents of children and adolescents with type 1 diabetes.

作者信息

Faulkner M S, Clark F S

机构信息

The College of Nursing, University of Tennessee-Memphis, Memphis, Tennessee (Dr Faulkner)

The Department of Infectious Diseases, St. Jude Children's Research Hospital, Memphis, Tennessee (Ms Clark)

出版信息

Diabetes Educ. 1998 Nov-Dec;24(6):721-7. doi: 10.1177/014572179802400607.

DOI:10.1177/014572179802400607
PMID:10025294
Abstract

The purpose of this study was to examine the issue of quality of life (QOL) of parents with children and adolescents with type 1 diabetes. Parental QOL was measured by the Parents Diabetes Quality of Life Questionnaire. Parental life satisfaction was most affected by the burden the child's diabetes placed on the family. The event having the most impact on parental QOL was the frequency of telling others about the child's diabetes. The greatest worry was that the child would develop complications from diabetes. Parents of school-aged children experienced significantly greater life satisfaction than parents of adolescents. Married parents had higher life satisfaction than those who were divorced. Metabolic control, reflected by HbA1c values, was associated with the life satisfaction of parents.

摘要

本研究的目的是探讨患有1型糖尿病的儿童和青少年的父母的生活质量(QOL)问题。通过父母糖尿病生活质量问卷来衡量父母的生活质量。孩子糖尿病给家庭带来的负担对父母的生活满意度影响最大。对父母生活质量影响最大的事件是向他人讲述孩子糖尿病的频率。最大的担忧是孩子会出现糖尿病并发症。学龄儿童的父母比青少年的父母生活满意度显著更高。已婚父母比离婚父母的生活满意度更高。糖化血红蛋白(HbA1c)值所反映的代谢控制与父母的生活满意度相关。

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