Flynn L L, McCollum J
University of Colorado Health Sciences Center, Denver, CO 80262.
Child Health Care. 1993 Winter;22(1):19-37. doi: 10.1207/s15326888chc2201_3.
The provision of family-centered care in the hospital arena has become a national commitment. Recognizing and supporting the family's role means evaluating whether attitudes, policies, and practices address the immediate and the long-term needs of the total family rather than just the current needs of the child. Results of a study to determine parents' perceptions of supportive services available in the hospital immediately following the birth of their child with special health care needs are reported. In-depth interviews with mothers living in rural areas were conducted. Mothers emphasized the importance of access to their child; the need for timely, honest, straightforward information about their child's condition and progress; the intense emotional reaction to the intensive care environment; and the importance of an early link to community-based early intervention services. Overall, parents conveyed the importance of recognizing the family as an integral part of the child. Implications and recommendations for family-centered services are discussed.
在医院环境中提供以家庭为中心的护理已成为一项国家承诺。认识并支持家庭的作用意味着评估态度、政策和做法是否满足整个家庭的近期和长期需求，而不仅仅是孩子当前的需求。本文报告了一项研究结果，该研究旨在确定有特殊医疗需求的孩子出生后，父母对医院提供的支持性服务的看法。研究人员对农村地区的母亲进行了深入访谈。母亲们强调了接触孩子的重要性；需要及时、诚实、直接地了解孩子的病情和进展情况；对重症监护环境产生的强烈情绪反应；以及尽早与社区早期干预服务建立联系的重要性。总体而言，父母们表达了将家庭视为孩子不可或缺的一部分的重要性。文中还讨论了以家庭为中心服务的影响和建议。
