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癌症:个人历程。边缘笔记。彼得·J·摩根医学博士日记

Cancer: A Personal Journey. Notes from the Edge.The Diary of Peter J. Morgan, M.D.

作者信息

Chabner BA

机构信息

Department of Hematology/Oncology, Massachusetts General Hospital, Cambridge, Massacusetts, 02114-2617, USA.

出版信息

Oncologist. 1997;2(4):206-207.

Abstract

It is a mistake to think that all personal experiences with cancer are the same. For certain, all cancer patients do confront the possibility of an early death and the prospect of pain and suffering due to the tumor and its treatment. But the specific emotional issues differ with each patient and each family, and the responses to these issues take many forms. In an eloquent and moving film, "Cancer: A Personal Journey. Notes from the Edge.," we are given the privilege of accompanying a remarkable young physician, Peter J. Morgan, on his journey with cancer, a two and one-half year journey that ended with his death at age 31. At age 29, Dr. Morgan, an internist-in-training who intended to pursue a career in hematology and oncology, noted a mass on his leg. Tragically, metastasis to the lungs had already taken place at the time of diagnosis of a synovial sarcoma. There followed the all-too-familiar story of chemotherapy and experimental treatments, pain, debilitation, and ultimately demise, and in itself this experience would move us with the sorrow of a precious life lost. What makes this particular story so remarkable are the insights of this young physician and the struggle for survival of a spirit that would not succumb to the "chaos" of cancer. In the two-year period of his life as a cancer patient, Peter Morgan kept a diary that records his thoughts, his emotional turmoil, and his reflections on life and an untimely death. In particular, we are able to understand the need for his spiritual self to remain alive and to grow despite the deterioration of his physical being. And we see that spiritual triumph in his compelling relationships with his family and his colleagues, in his reflections on art and music and nature, and most of all in his writings and his appreciation of the immense possibilities for joy in life. This is not an easy journey to watch, but the intense sadness of his experience is balanced by his friendships and the great satisfaction he derived from patient care until the end of his own illness. We hear accounts of his leaving his hospital bed in New York City, where he has received an infusion of chemotherapy, and driving across Long Island to volunteer at a university out-patient clinic in Stonybrook. During the last year of his life, he becomes a beloved teacher and attending physician in this clinic. One is left with the feeling that Peter Morgan has learned a great deal about what is important and beautiful in this life. The filmmaker, Ruth Yorkin Drazen, and the narrator, Matthew Broderick, have created a masterpiece. I can remember only one other movie, "Shadowland," the story of C.S. Lewis's marriage and the loss of his wife due to cancer, that speaks as eloquently to the confrontation with cancer. In that film, one is left with the overwhelming sorrow of the husband. The present film goes far beyond many of the personal narratives about cancer experiences that one finds so often in the media, simply because it allows a remarkable individual to speak to us about what was most precious in his life. For those of us in the medical profession, his message is particularly meaningful: his work as a physician was at the top of his list.

摘要

认为所有癌症患者的个人经历都是相同的,这是一个错误的想法。诚然,所有癌症患者都确实面临着早逝的可能性,以及因肿瘤及其治疗而带来的痛苦和折磨。但具体的情感问题因每个患者和每个家庭而异,对这些问题的反应也有多种形式。在一部言辞优美、感人至深的影片《癌症:个人旅程。边缘笔记》中,我们有幸陪伴一位杰出的年轻医生彼得·J·摩根踏上他与癌症抗争的旅程,这是一段长达两年半的旅程,最终以他31岁的离世而告终。29岁时,摩根医生是一名正在接受内科培训的实习医生,他打算从事血液学和肿瘤学领域的职业,当时他注意到腿部有一个肿块。不幸的是,在诊断为滑膜肉瘤时,肺部已经发生了转移。接下来是化疗和实验性治疗、疼痛、身体衰弱以及最终死亡这些再熟悉不过故事,这段经历本身就会因宝贵生命的消逝而让我们感到悲痛。使这个特别的故事如此非凡的,是这位年轻医生的深刻见解,以及一种不屈服于癌症“混乱”的求生精神。在他作为癌症患者的两年时间里,彼得·摩根写了一本日记,记录了他的想法、他的情感动荡,以及他对生命和过早死亡的思考。特别是,我们能够理解,尽管他的身体状况每况愈下,但他精神层面的自我仍有保持活力并成长的需求。我们在他与家人和同事之间令人动容的关系中,在他对艺术、音乐和自然的思考中,尤其是在他的作品以及他对生活中巨大欢乐可能性的感悟中,看到了这种精神上的胜利。观看这段旅程并不轻松,但他的友谊以及他从照顾患者中获得的巨大满足感,直至他生命的最后一刻,平衡了他经历中的强烈悲伤。我们听到他讲述自己离开纽约市接受化疗输液的病床,开车穿越长岛到斯托尼布鲁克的一所大学门诊诊所做志愿者的事情。在他生命的最后一年,他成为了这家诊所备受爱戴的教师和主治医生。人们不禁会觉得彼得·摩根对生命中重要和美好的事物有了很多感悟。电影制片人露丝·约金·德拉岑和旁白者马修·布罗德里克创造了一部杰作。我只记得另一部电影《影子大地》,讲述了C.S.刘易斯的婚姻以及他妻子因癌症去世的故事,它对与癌症抗争的讲述同样动人。在那部电影中,留给观众的是丈夫无尽的悲痛。这部电影远远超越了我们在媒体上经常看到的许多关于癌症经历的个人叙述,仅仅是因为它让一位非凡的个体向我们讲述了他生命中最珍贵的东西。对于我们这些从事医疗行业的人来说,他传达的信息尤其有意义:他作为一名医生的工作排在他生命中最重要事情的首位。

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