Pain H
Disability Equipment Assessment Centre, University of Southampton, Southampton General Hospital, UK.
Child Care Health Dev. 1999 Jul;25(4):299-312. doi: 10.1046/j.1365-2214.1999.00132.x.
Fifteen semistructured interviews were conducted with 20 parents (n = 5 with both parents; n = 10 with mother only) of disabled children who had a range of physical and learning difficulties, to explore what information they had received about their child's disabilities, from whom and whether they had found it useful. Information needs were also explored. The interviews were audiotaped and transcribed, then analysed for content. The reasons for needing the information was examined for themes. Personal communication was the most frequently cited medium of information. Parents most frequently reported professionals as their source of information, but parents and voluntary organizations were also mentioned. Information was found to assist the process of adjusting emotionally to their child's disabilities, to enable parents to access services and benefits, and to improve their management of their child's behaviour. Parents' comments indicated that information was usually useful, but occasionally of mixed benefit.
对20名残疾儿童的家长（其中5名是父母双方都参与，10名是只有母亲参与）进行了15次半结构化访谈，这些儿童有一系列身体和学习困难，目的是探究他们从何处获得了关于孩子残疾的信息、信息来源是谁以及他们是否觉得这些信息有用。同时也探究了信息需求。访谈进行了录音和转录，然后对内容进行分析。对获取信息的原因进行主题审查。个人交流是最常被提及的信息传播媒介。家长最常报告称专业人士是他们的信息来源，但也提到了家长和志愿组织。发现信息有助于家长在情感上适应孩子的残疾状况，使家长能够获得服务和福利，并改善他们对孩子行为的管理。家长的评论表明，信息通常是有用的，但偶尔也有好坏参半的情况。
