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乳腺癌患者与医疗服务提供者在告知坏消息的指导原则上是否存在共识?

Is there consensus between breast cancer patients and providers on guidelines for breaking bad news?

作者信息

Girgis A, Sanson-Fisher R W, Schofield M J

机构信息

New South Wales Cancer Council, Cancer Education Research Program (CERP), University of Newcastle, Australia.

出版信息

Behav Med. 1999 Summer;25(2):69-77. doi: 10.1080/08964289909595739.

Abstract

Eighty-four breast cancer patients, 64 oncologists, and 140 oncology nurses rated the importance of 15 general principles and 12 recommended steps to guide clinicians in breaking bad news to patients. At least 70% of the three samples rated 7 of the 15 principles and 6 of the 12 steps as essential. All three groups agreed that patients have a legal and moral right to accurate and reliable information and that patients should be given the diagnosis and prognosis honestly and in simple language, though not bluntly. The groups differed on the relative importance of other items, with less variation about the steps than about the principles. Patients' perceptions of the importance of various guideline steps and principles are probably most important, given that patients receive the troubling news and that research indicates that how the news is delivered is associated with important patient outcomes. Recommendations for further research are discussed.

摘要

84名乳腺癌患者、64名肿瘤学家和140名肿瘤护理人员对15条一般原则和12条推荐步骤的重要性进行了评估,这些原则和步骤旨在指导临床医生向患者传达坏消息。在这三个样本中,至少70%的人将15条原则中的7条以及12个步骤中的6条评为至关重要。所有三组都认为,患者拥有获取准确可靠信息的法律和道德权利,并且应该用简单易懂的语言诚实地告知患者诊断结果和预后情况,尽管不必直言不讳。在其他项目的相对重要性上,三组存在差异,步骤方面的差异小于原则方面。鉴于患者会收到令人不安的消息,且研究表明消息的传达方式与患者的重要预后结果相关,患者对各种指导方针步骤和原则重要性的看法可能最为重要。文中还讨论了进一步研究的建议。

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