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将精神层面纳入肿瘤学生活质量测量的一个实例。

A case for including spirituality in quality of life measurement in oncology.

作者信息

Brady M J, Peterman A H, Fitchett G, Mo M, Cella D

机构信息

Institute for Health Services Research and Policy Studies, Northwestern University, Evanston, IL, USA.

出版信息

Psychooncology. 1999 Sep-Oct;8(5):417-28. doi: 10.1002/(sici)1099-1611(199909/10)8:5<417::aid-pon398>3.0.co;2-4.

Abstract

Most of the commonly used quality of life (QOL) instruments in oncology do not include spirituality as a core domain. However, previous research suggests that spirituality might be an important aspect of QOL for cancer patients and that it may, in fact, be especially salient in the context of life-threatening illness. This study used a large (n=1610) and ethnically diverse sample to address three questions relevant to including spirituality in QOL measurement: (1) Does spirituality demonstrate a positive association with QOL?; (2) Is this association unique?; and (3) Is there clinical utility in including spirituality in QOL measurement? Spirituality, as measured by the Functional Assessment of Chronic Illness Therapy-Spiritual Well-Being (FACIT-Sp), was found to be associated with QOL to the same degree as physical well-being, a domain unquestioned in its importance to QOL. The significant association between spirituality and QOL was unique, remaining after controlling for core QOL domains as well as other possible confounding variables. Furthermore, spiritual well-being was found to be related to the ability to enjoy life even in the midst of symptoms, making this domain a potentially important clinical target. It is concluded that these results support the move to the biopsychosocialspiritual model for QOL measurement in oncology.

摘要

肿瘤学中大多数常用的生活质量(QOL)评估工具并未将精神性作为一个核心领域。然而,先前的研究表明,精神性可能是癌症患者生活质量的一个重要方面,事实上,在危及生命的疾病背景下,它可能尤为突出。本研究使用了一个规模较大(n = 1610)且种族多样的样本,以解决与在生活质量测量中纳入精神性相关的三个问题:(1)精神性与生活质量是否呈正相关?;(2)这种关联是否独特?;以及(3)在生活质量测量中纳入精神性是否具有临床实用性?通过慢性病治疗功能评估-精神健康(FACIT-Sp)测量的精神性,被发现与生活质量的关联程度与身体健康相同,而身体健康对生活质量的重要性是毋庸置疑的。精神性与生活质量之间的显著关联是独特的,在控制了生活质量的核心领域以及其他可能的混杂变量后仍然存在。此外,发现精神健康与即使在有症状的情况下享受生活的能力有关,这使得该领域成为一个潜在的重要临床靶点。得出的结论是,这些结果支持在肿瘤学中转向生物心理社会精神模型进行生活质量测量。

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