Pérez-Cuevas J B, Formiga F, García-Carrasco M, Ramos M, Lara C, Rojas-Rodríguez J
Servicio de Reumatología, Hospital de Especialidades Gral. Manuel Avila Camacho, Puebla, México.
An Med Interna. 1999 Sep;16(9):457-60.
To determined in a prospective study the quality of life (QoL) in the systemic lupus erythematosus (SLE) females. We also studied the relationship between QoL and the activity of lupus disease.
We studied 67 consecutive SLE females. To study the QoL we administered the Medical Outcomes Study Short form Scale SF-36 (MOS-SF36). This questionnaire is composted for 36 question and comprises eighth subscales of QoL. We also measured the activity with the Mexico-SLE Disease Activity Index (MEX-SLEDAI).
The mean age of the 67 SLE patients at disease onset was 38.3 +/- 14 years, and mean duration of disease was 66 +/- 42 months. The values of QoL answers were lower. No relationship was found between the age of patients and QoL. The subscales with poor punctuation were the general heath and the role physical. Multiple variate analyses showed that activity was associated with vitality (r = 0.36; p = 0.003).
The MOS-SF36 questionnaire indicate that SLE females patients had lower results about her quality of life.
在一项前瞻性研究中确定系统性红斑狼疮（SLE）女性的生活质量（QoL）。我们还研究了生活质量与狼疮疾病活动之间的关系。
我们研究了67例连续的SLE女性。为了研究生活质量，我们采用了医学结局研究简表SF - 36（MOS - SF36）。该问卷由36个问题组成，包括八个生活质量子量表。我们还使用墨西哥 - SLE疾病活动指数（MEX - SLEDAI）测量疾病活动度。
67例SLE患者发病时的平均年龄为38.3±14岁，平均病程为66±42个月。生活质量答案的值较低。未发现患者年龄与生活质量之间的关系。得分较低的子量表是总体健康和身体功能。多元分析表明，疾病活动度与活力相关（r = 0.36；p = 0.003）。
MOS - SF36问卷表明SLE女性患者的生活质量结果较低。
