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年龄相关性黄斑变性的视力康复

Vision rehabilitation for age-related macular degeneration.

作者信息

Park W

机构信息

Johns Hopkins University School of Medicine, Baltimore, MD 21205, USA.

出版信息

Int Ophthalmol Clin. 1999 Fall;39(4):143-62. doi: 10.1097/00004397-199903940-00010.

Abstract

Though the numbers of patients with ARMD are high, associated referrals for vision rehabilitation are not. Practitioners need to refer patients with age-related maculopathy when medical and surgical treatment are no longer possible, and patients need to be educated to that fact. The impact of improving activities of daily living may be monumental and benefits society as a whole. People who are visually impaired are often ill-prepared to deal with the substantial adjustment involved, further stressing their entire support system. It may not be safe for visual and systemic reasons for older adults to cook, clean, and maintain their home. Poor vision contributes to the already increased risk of falls and subsequent fractures in these patients. Individuals who may have already been told they can no longer drive now face the possibility of being unable to live in their houses. Their independence may be threatened dramatically and abruptly. All these circumstances contribute to anxiety and depression. Patients with ARMD need to be educated about their disease process (teaching that can never be assumed to have been initiated). They need to be educated that they will not go completely blind and that, with assistance, they can accomplish a great deal. With today's technology, it is not difficult to help visually impaired individuals with ARMD, unless they are not referred or lack motivation. The primary complaint of an individual with ARMD is recognition of central detail. This affects all activities of daily living, and patient performance is subject to the duration and severity of the disease (including the size, density, and location of the central scotoma) and to their understanding of the disease. Rubin and coworkers, found that slow reading performance of patients with a dense central scotoma might reflect inherent limitations of peripheral retina for complex visual tasks. ARMD in most cases lends itself to magnification that enlarges the object beyond the blind spot for visual recognition. Visual devices for distance, intermediate, and near tasks are usually helpful after patient education regarding their predicament and education for adaptation. Eccentric fixation techniques should be one of the first exercises mastered prior to further visual rehabilitation. Activities of daily living should be addressed with every individual, and appropriate assessment of existing problems and modifications to those problems should be implemented. Orientation and mobility should be offered to any individual who is legally blind or has difficulty with safe travel. A great deal of empathy is required on the part of the vision rehabilitation team. However, when patients lack of motivation, feel despair, or exhibit psychosocial overtones of reliance on others, they needs to be confronted, and appropriate action must be taken. Social work consultation and access to a support group can go a long way in mental strengthening and socialization. The author conducted a support group that, over a 10-year period, had a negligible dropout rate owing to the positive socialization obtained from attending the meetings. Older adults who are still working should be referred to an agency for vocational and financial resources if so desired. There is the issue of driving. In the United States, maintaining a driver's license is an important part of the quality of life. Older adults are the most rapidly growing segment of the driving population in the United States. The percentage of drivers older than 65 is expected to increase 17% by the year 2020. The rate of traffic fatalities among older adults has increased substantially, although the overall rate of fatalities is declining. The elderly drive fewer miles but have the highest rate of crashes per miles driven. Many important issues regard the older adult driver. (ABSTRACT TRUNCATED)

摘要

尽管年龄相关性黄斑变性(ARMD)患者数量众多,但与之相关的视力康复转诊情况却并非如此。当药物和手术治疗不再可行时,从业者需要将年龄相关性黄斑病变患者转诊,并且需要让患者了解这一情况。改善日常生活活动的影响可能是巨大的,并且会使整个社会受益。视力受损者往往没有做好应对所涉及的重大调整的准备,这进一步给他们的整个支持系统带来压力。对于老年人来说,出于视力和全身健康的原因,做饭、打扫和打理家居可能并不安全。视力不佳会增加这些患者已经存在的跌倒及随后骨折的风险。那些可能已经被告知不能再开车的人现在面临着无法住在自己家中的可能性。他们的独立性可能会受到极大且突然的威胁。所有这些情况都会导致焦虑和抑郁。需要对ARMD患者进行疾病进程方面的教育(绝不能假定已经开展过此类教育)。需要让他们明白自己不会完全失明,并且在得到帮助的情况下,他们能够完成很多事情。借助当今的技术,帮助患有ARMD的视力受损者并不困难,除非他们没有得到转诊或者缺乏动力。ARMD患者的主要诉求是对中央细节的识别。这会影响所有的日常生活活动,患者的表现取决于疾病的持续时间和严重程度(包括中央暗点的大小、密度和位置)以及他们对疾病的理解。鲁宾及其同事发现,中央密集暗点患者的阅读速度较慢,这可能反映了周边视网膜在处理复杂视觉任务方面的固有局限性。在大多数情况下,ARMD适合使用放大设备,将物体放大到超出盲点范围以便视觉识别。在对患者进行关于其困境的教育以及适应教育之后,用于远距离、中距离和近距离任务的视觉设备通常会有所帮助。在进一步进行视力康复之前,偏心注视技术应该是首先要掌握的练习之一。应该针对每个个体解决日常生活活动问题,并对现有问题进行适当评估以及对这些问题进行调整。对于任何法定失明或出行存在安全困难的人,都应该提供定向和移动训练。视力康复团队需要具备极大的同理心。然而,当患者缺乏动力、感到绝望或表现出依赖他人的社会心理倾向时,需要与他们进行沟通,并采取适当的行动。社会工作咨询和加入支持小组在增强心理承受力和社交方面大有帮助。作者开展了一个支持小组,在10年的时间里,由于参加会议获得了积极的社交体验,其退出率微乎其微。如果有意愿,仍在工作年龄的老年人应该被转介到一个提供职业和财务资源的机构。还有驾驶的问题。在美国,持有驾照是生活质量的一个重要方面。老年人是美国驾驶人群中增长最快的部分。预计到2020年,65岁以上驾驶者所占比例将增加17%。尽管总体死亡率在下降,但老年人中的交通死亡事故率大幅上升。老年人行驶的里程较少,但每行驶一英里的撞车率却是最高的。许多重要问题都与老年驾驶者有关。(摘要截选)

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