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皮肤病生活质量指数:来自丹麦住院患者和门诊患者的数据。

Dermatology life quality index: data from Danish inpatients and outpatients.

作者信息

Zachariae R, Zachariae C, Ibsen H, Mortensen J T, Wulf H C

机构信息

Department of Psychology, University of Aarhus, Denmark.

出版信息

Acta Derm Venereol. 2000 Jul-Aug;80(4):272-6. doi: 10.1080/000155500750012153.

Abstract

The aim of the present study was to provide data on the reliability and validity of a Danish translation of the Dermatology Life Quality Index (DLQI), a short measure of the impact of dermatological diseases on quality of life. The DLQI was administered to 200 outpatients and 100 hospitalized patients suffering from a range of dermatological diseases and to 100 sex- and age-matched healthy controls. Mean scores, internal consistency and test-retest reliability were comparable to the results reported for the original English version. Hospitalized patients reported greater impairment of disease-related quality of life than outpatients, and patients with atopic dermatitis and psoriasis exhibited greater scores than patients suffering from other dermatological diseases. Discriminant, construct and predictive validities of the Danish translation of the DLQI were satisfactory, as indicated by significant associations between DLQI scores and physician-rated disease severity, disease duration and the time patients were willing to spend each day on a hypothetical effective treatment. The results also suggest that the emphasis Danish patients place on various aspects of disability covered by the questionnaire is similar to that of English patients. In conclusion, the Danish translation of the DLQI showed satisfactory reliability and the preliminary results indicate that this version is a valid measure, which can be used in both research and clinical settings.

摘要

本研究的目的是提供有关皮肤病生活质量指数(DLQI)丹麦语翻译版的信度和效度的数据,DLQI是一种衡量皮肤病对生活质量影响的简短工具。对200名门诊患者、100名患有多种皮肤病的住院患者以及100名年龄和性别匹配的健康对照者进行了DLQI评估。平均得分、内部一致性和重测信度与原始英文版报告的结果相当。住院患者报告的疾病相关生活质量受损程度高于门诊患者,特应性皮炎和银屑病患者的得分高于其他皮肤病患者。DLQI丹麦语翻译版的判别效度、结构效度和预测效度令人满意,这表现为DLQI得分与医生评定的疾病严重程度、病程以及患者每天愿意花在假设有效治疗上的时间之间存在显著关联。结果还表明,丹麦患者对问卷所涵盖的残疾各个方面的重视程度与英国患者相似。总之,DLQI丹麦语翻译版显示出令人满意的信度,初步结果表明该版本是一种有效的测量工具,可用于研究和临床环境。

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