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孟加拉国脑瘫患儿母亲在使用早期干预服务时面临的困难。

Difficulties for mothers in using an early intervention service for children with cerebral palsy in Bangladesh.

作者信息

McConachie H, Huq S, Munir S, Akhter N, Ferdous S, Khan N Z

机构信息

Department of Child Health, University of Newcastle, Newcastle upon Tyne, UK.

出版信息

Child Care Health Dev. 2001 Jan;27(1):1-12. doi: 10.1046/j.1365-2214.2001.00207.x.

DOI:10.1046/j.1365-2214.2001.00207.x
PMID:11136337
Abstract

Given the numbers of disabled children in Bangladesh and the lack of trained professionals, innovative forms of service delivery are required. The Bangladesh Protibondhi Foundation has developed an outreach parent training service based at two centres, one urban and one rural. Mothers are shown how to use pictorially based Distance Training Packages (DTP), which they take home. This paper presents findings concerning factors which seem to affect mothers' attendance with their children at DTP advisory sessions. The study followed 47 children with cerebral palsy, aged between 2 and 5.5 years, over a period of around 18 months. The main factors predicting higher attendance were the child's sex (i.e. boys were brought back more often), particularly in the rural area, and lower adaptation to the child reported by the mother. The problems described by mothers in using the DTP advisory service were economic (such as transport costs), cultural (such as mothers not being permitted out alone), and medical (such as the child having repeated fits). The implications for future service development are discussed.

摘要

鉴于孟加拉国残疾儿童的数量以及缺乏训练有素的专业人员,需要创新的服务提供形式。孟加拉国普罗蒂邦迪基金会在两个中心(一个城市中心和一个农村中心)开展了一项外展家长培训服务。向母亲们展示如何使用以图片为基础的远程培训包(DTP),她们可以将其带回家。本文介绍了有关似乎影响母亲与孩子参加DTP咨询会议的因素的研究结果。该研究跟踪了47名年龄在2至5.5岁之间的脑瘫儿童,为期约18个月。预测更高出席率的主要因素是孩子的性别(即男孩被带回的频率更高),特别是在农村地区,以及母亲报告的孩子较低的适应能力。母亲们在使用DTP咨询服务时遇到的问题包括经济问题(如交通成本)、文化问题(如母亲不被允许独自外出)和医疗问题(如孩子反复抽搐)。文中还讨论了对未来服务发展的影响。

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