Elwyn G, Edwards A, Kinnersley P, Grol R
Department of General Practice, University of Wales College of Medicine, USA.
Br J Gen Pract. 2000 Nov;50(460):892-9.
Involving patients in healthcare decisions makes a potentially significant and enduring difference to healthcare outcomes. One difficulty (among many) is that the 'involvement' of patients in decisions has been left undefined. It is usually conceptualised as 'patient centredness', which is a broad and variably interpreted concept that is difficult to assess using current tools. This paper attempts to gauge general practitioners' (GPs') attitudes to patient involvement in decision making and their views about the contextual factors, competences, and stages required to achieve shared decisions within consultations.
To explore and understand what constitutes the appropriate involvement of patients in decision making within consultations, to consider previous theory in this field, and to propose a set of competences (skills) and steps that would enable clinical practitioners (generalists) to undertake 'shared decision making' in their clinical environment.
Qualitative study using focus group interviews of key informants.
Experienced GPs with educational roles have positive attitudes to the involvement of patients in decisions, provided the process matches the role individuals wish to play. They perceive some clinical problems as being more suited to a cooperative approach to decision making and conceptualised the existence of professional equipoise towards the existence of legitimate treatment options as an important facilitative factor. A sequence of skills was proposed as follows: 1) implicit or explicit involvement of patients in the decision-making process; 2) explore ideas, fears, and expectations of the problem and possible treatments; 3) portrayal of equipoise and options; 4) identify preferred data format and provide tailor-made information; 5) checking process: understanding of information and reactions (e.g. ideas, fears, and expectations of possible options); 6) acceptance of process and decision making role preference; 7) make, discuss or defer decisions; 8) arrange follow-up.
These clinicians viewed involvement as an implicit ethos that should permeate medical practice, provided that clinicians respect and remain alert to patients' individual preferred roles in decision making. The interpersonal skills and the information requirements needed to successfully share decisions are major challenges to the clinical consultation process in medical practice. The benefits of patient involvement and the skills required to achieve this approach need to be given much higher priority at all levels: at policy, education, and within further professional development strategies.
让患者参与医疗决策可能会对医疗结果产生重大且持久的影响。(众多困难中的)一个难点在于,患者在决策中的“参与”尚未得到明确界定。它通常被概念化为“以患者为中心”,这是一个宽泛且解释各异的概念,难以用现有工具进行评估。本文试图衡量全科医生(GP)对患者参与决策的态度,以及他们对在会诊中实现共同决策所需的背景因素、能力和阶段的看法。
探讨并理解在会诊中患者适当参与决策的构成要素,考量该领域先前的理论,并提出一套能力(技能)和步骤,使临床从业者(通科医生)能够在其临床环境中进行“共同决策”。
采用对关键信息提供者进行焦点小组访谈的定性研究。
具有教育职责的经验丰富的全科医生对患者参与决策持积极态度,前提是该过程与个人希望扮演的角色相匹配。他们认为某些临床问题更适合采用合作式决策方法,并将对存在合理治疗方案的专业平衡的认知视为一个重要的促进因素。提出了一系列技能,如下:1)患者在决策过程中的隐性或显性参与;2)探究对问题及可能治疗方法的想法、担忧和期望;3)描述平衡状态和选择;4)确定首选的数据形式并提供量身定制的信息;5)检查过程:对信息及反应(如对可能选择的想法、担忧和期望)的理解;6)接受过程及决策角色偏好;7)做出、讨论或推迟决策;8)安排随访。
这些临床医生将参与视为一种应贯穿医疗实践的隐性理念,前提是临床医生尊重并时刻留意患者在决策中个人偏好的角色。成功进行共同决策所需的人际技能和信息要求是医疗实践中临床会诊过程面临的重大挑战。在政策、教育以及进一步的专业发展策略等各个层面,都需要将患者参与的益处以及实现这种方法所需的技能置于更高的优先地位。