Clinch J, Tugwell P, Wells G, Shea B
Clinical Epidemiology Unit, The Ottawa Hospital, and the Faculty of Medicine, University of Ottawa, Ontario, Canada.
J Rheumatol. 2001 Feb;28(2):445-51.
Over the past several years an interest has developed in health related quality of life questionnaires that address the specific concerns of each individual rather than the entire range of potential concerns for all patients. Even disease-specific questionnaires do not capture the concerns of all individuals and some items in these questionnaires are irrelevant for a fairly large minority of people. This paper focuses on individualized functional priority questionnaires that allow patients to specify and prioritize their own personal disease related problems. Of particular interest are the scoring methods and responsiveness of these questionnaires, both necessary variables for defining minimal clinically important differences.
在过去几年中，人们对与健康相关的生活质量问卷产生了兴趣，这些问卷关注的是每个个体的特定问题，而非所有患者可能面临的全部潜在问题。即使是针对特定疾病的问卷也无法涵盖所有个体的问题，而且这些问卷中的一些项目对相当一部分人来说并不相关。本文重点关注个性化功能优先级问卷，这类问卷能让患者明确并排列出自己个人与疾病相关的问题。特别值得关注的是这些问卷的评分方法和反应度，它们都是定义最小临床重要差异所需的变量。
