Roter Debra
Department of Health Policy and Management, Johns Hopkins School of Public Health, Baltimore, USA.
Health Expect. 2000 Mar;3(1):17-25. doi: 10.1046/j.1369-6513.2000.00073.x.
The ascendance of the autonomy paradigm in treatment decision-making has evolved over the past several decades to the point where few bioethicists would question that it is the guiding value driving health-care provider behaviour. In achieving quasi-legal status, decision-making has come to be regarded as a formality largely removed from the broader context of medical communication and the therapeutic relationship within which care is delivered. Moreover, disregard for individual patient preference, resistance, reluctance, or incompetence has at times produced pro forma and useless autonomy rituals. Failures of this kind, have been largely attributed to the psychological dynamics of the patients, physicians, illnesses, and contexts that characterize the medical decision. There has been little attempt to provide a framework for accommodating or understanding the larger social context and social influences that contribute to this variation. Applying Paulo Freire's participatory social orientation model to the context of the medical visit suggests a framework for viewing the impact of physicians' communication behaviours on patients' capacity for treatment decision-making. Physicians' use of communication strategies can act to reinforce an experience of patient dependence or self-reliance in regard to the patient-physician relationship generally and treatment decision-making, in particular. Certain communications enhance patient participation in the medical visit's dialogue, contribute to patient engagement in problem posing and problem-solving, and finally, facilitate patient confidence and competence to undertake autonomous action. The purpose of this essay is to place treatment decision-making within the broader context of the therapeutic relationship, and to describe ways in which routine medical visit communication can accommodate individual patient preferences and help develop and further patient capacity for autonomous decision-making.
在过去几十年里,治疗决策中自主范式的主导地位不断发展,如今几乎没有生物伦理学家会质疑它是驱动医疗服务提供者行为的指导价值观。在获得准法律地位的过程中,决策已被视为一种形式,很大程度上脱离了医疗沟通的更广泛背景以及提供护理的治疗关系。此外,忽视个体患者的偏好、抵触情绪、不情愿或无行为能力,有时会产生形式化且无用的自主程序。这类失败很大程度上归因于患者、医生、疾病以及构成医疗决策特征的背景的心理动态。几乎没有人尝试提供一个框架来适应或理解促成这种差异的更大社会背景和社会影响。将保罗·弗莱雷的参与式社会取向模型应用于医疗问诊情境,提出了一个框架,用于审视医生沟通行为对患者治疗决策能力的影响。医生对沟通策略的运用,总体上在医患关系尤其是治疗决策方面,能够强化患者依赖或自立的体验。某些沟通方式能增强患者参与医疗问诊对话的程度,促使患者参与提出问题和解决问题,最终提升患者自主行动的信心和能力。本文的目的是将治疗决策置于治疗关系的更广泛背景中,并描述常规医疗问诊沟通能够适应个体患者偏好并帮助培养和进一步提升患者自主决策能力的方式。