McDonnell K A, Gielen A C, Wu A W, O'Campo P, Faden R
School of Hygiene and Public Health, Johns Hopkins University, Baltimore, MD, USA.
Qual Life Res. 2000;9(8):931-40. doi: 10.1023/a:1008909919456.
Although women had been under recognized in the literature on HIV/AIDS, increasing numbers of studies have focused on the lives and experiences of women living with HIV/AIDS. Areas of research in which the study of women and HIV continues to be noticeably lacking include health related quality of life (HRQOL). This paper describes HRQOL in an inner city sample of 287 HIV positive non-pregnant women, interviewed as part of a larger multi-site CDC funded study of the reproductive health of women. The average age of the respondents was 33 years and women had known their HIV status an average of 41 months. HRQOL was assessed using a 17-item modified version of the Medical Outcomes Study-HIV Health Survey and demonstrated acceptable internal consistency (0.64-0.89) and variability. Women in our study were similar to other HIV-positive female samples and reported lower levels of well-being and functioning than some HIV-positive male samples. Women's responses to individual items and areas of potential need for health care are discussed. Examination of HRQOL in women with HIV can aid in the comparison of how women and men are affected by HIV and can help health care professionals identify needed services and include possible interventions to promote quality of life.
尽管在关于艾滋病毒/艾滋病的文献中,女性一直未得到充分关注,但越来越多的研究聚焦于感染艾滋病毒/艾滋病女性的生活与经历。在女性与艾滋病毒研究中仍明显欠缺的领域包括健康相关生活质量(HRQOL)。本文描述了在一个内城区样本中287名未怀孕的艾滋病毒阳性女性的健康相关生活质量,这些女性是作为美国疾病控制与预防中心(CDC)资助的一项关于女性生殖健康的大型多地点研究的一部分接受访谈的。受访者的平均年龄为33岁,女性知晓自己艾滋病毒感染状况的平均时间为41个月。健康相关生活质量使用医学结局研究 - 艾滋病毒健康调查的一个17项修改版本进行评估,结果显示具有可接受的内部一致性(0.64 - 0.89)和变异性。我们研究中的女性与其他艾滋病毒阳性女性样本相似,并且报告的幸福感和功能水平低于一些艾滋病毒阳性男性样本。文中讨论了女性对各个项目的回答以及潜在的医疗保健需求领域。对感染艾滋病毒女性的健康相关生活质量进行研究有助于比较艾滋病毒对女性和男性的影响方式,并能帮助医疗保健专业人员确定所需服务,并纳入可能的干预措施以提高生活质量。