Blackhall L J, Frank G, Murphy S, Michel V
Pacific Center for Health Policy and Ethics, University of Southern California, Los Angeles, USA.
J Urban Health. 2001 Mar;78(1):59-71. doi: 10.1093/jurban/78.1.59.
After a survey of 800 seniors from four different ethnic groups showed that Korean-American and Mexican-American subjects were much less likely than their European-American and African-American counterparts to believe that a patient should be told the truth about the diagnosis and prognosis of a terminal illness, we undertook an ethnographic study to look more deeply at attitudes and experiences of these respondents. European-American and African-American respondents were more likely to view truth-telling as empowering, enabling the patient to make choices, while the Korean-American and Mexican-American respondents were more likely to see the truth-telling as cruel, and even harmful, to the patients. Further differences were noted in how the truth should be told and even in definitions of what constitutes "truth" and "telling." Clinical and bioethics professionals should be aware of how their cultural and economic backgrounds influence the way they perceive ethical dilemmas and remember to make room for the diverse views of the populations they serve.
在对来自四个不同种族群体的800名老年人进行调查后发现,韩裔美国人和墨西哥裔美国人比他们的欧美裔和非裔美国人同行更不太可能认为应该告知患者绝症的诊断和预后情况。之后,我们开展了一项人种志研究,以更深入地了解这些受访者的态度和经历。欧美裔和非裔美国受访者更倾向于将告知真相视为赋予患者权力,使患者能够做出选择,而韩裔美国人和墨西哥裔美国受访者则更倾向于认为告知真相对患者来说是残酷的,甚至是有害的。在告知真相的方式上,甚至在“真相”和“告知”的定义上,也存在进一步的差异。临床和生物伦理专业人员应该意识到他们的文化和经济背景如何影响他们对伦理困境的认知方式,并记住要为他们所服务人群的不同观点留出空间。